themommy
Active member
- Joined
- May 3, 2012
- Messages
- 82
- Reason
- CALS
- Diagnosis
- 03/2012
- Country
- US
- State
- FL
- City
- Saint Petersburg
Another 7 pounds gone in a week and a half. It's disappointing. No matter what we do - can't keep the weight on. He won't drink ensure. Wants everything to be ok - and the same as it always was....It is so hard to accept I guess. Of course - its hard for me too. The doctor told me that once the disease paces itself - it rarely - ever plateaus. CALS if this is true - my journey is short. This beast is like a raging dragon - destroying everything in its path...In the last two months we have gone from a numb arm and an occasional slurred word to full blown - knock your socks off - ALS /FTD/BP. We are getting a ventilator this week. They are assessing the rest of his needs too.
It doesn't seem like the limb onset is moving as quickly as the rest. I say that but then wonder if its really true. Its now in both legs and the other arm. Is this how it goes? In two months it has traveled to the rest of his limbs. Do people go for months or years without another symptom?
I was hoping for a miracle or two....If ya got 'em in your pocket - I sure could use one along about now...
It doesn't seem like the limb onset is moving as quickly as the rest. I say that but then wonder if its really true. Its now in both legs and the other arm. Is this how it goes? In two months it has traveled to the rest of his limbs. Do people go for months or years without another symptom?
I was hoping for a miracle or two....If ya got 'em in your pocket - I sure could use one along about now...