st123
Distinguished member
- Joined
- Feb 2, 2012
- Messages
- 304
- Reason
- Lost a loved one
- Country
- US
- State
- Michigan
- City
- Mid
Dad's first visit to the ALS clinic is this Tuesday. I have a long list of questions, most of which I assume I'll just be checking off as they provide information, but I want to be sure I cover everything I should.
FTD is on the list. I've discussed it with Mom and she isn't completely convinced that he has it, but I am.
PT and OT will be covered, I'm sure, but I have to figure out how it all gets arranged. Hopefully, he'll qualify for in-home care as it's getting very hard for him to take car trips.
I'm sure nutrition will be covered as well.
What I really want and won't get, is a good idea of what to expect from this disease and when. (The project manager in me just can't quit trying to put a timeline on this thing).
Suggestions as to what should be on my "don't forget to ask" list would be greatly appreciated. Thank you!
FTD is on the list. I've discussed it with Mom and she isn't completely convinced that he has it, but I am.
PT and OT will be covered, I'm sure, but I have to figure out how it all gets arranged. Hopefully, he'll qualify for in-home care as it's getting very hard for him to take car trips.
I'm sure nutrition will be covered as well.
What I really want and won't get, is a good idea of what to expect from this disease and when. (The project manager in me just can't quit trying to put a timeline on this thing).
Suggestions as to what should be on my "don't forget to ask" list would be greatly appreciated. Thank you!