happygardener
Active member
- Joined
- Aug 27, 2011
- Messages
- 91
- Reason
- Loved one DX
- Diagnosis
- 08/2011
- Country
- CA
- State
- Nova scotia
- City
- Porters lake
My husband was diagonsed in aug after almost a year of symptoms.His condition is deeroriating but he is in denial..Determined that dr.s are wrong and he is going to get better.I am caring for him and doing whatever I can to make him comfortable.We have been to the als clinic and he says we are not going back.i am so fearfull that something drastic will happen and we will not be able to recieve help.Moslty I am concered about swallowing issues and getting a feeding tube(he can barely speak,his mobility is poor,muscles badly atrophied and he is extremly weak.We to range of mobility exersies daily but he refuses all medication.What are signs he is progress ing to the next stage.How can I tell if he has breathing issues.I ask if he has headaches and i can hear a difference in his breathing.I am being supportive in all his efforts but it is breaking my heart.I have read so much my head is spinning and all I get from dr.s is that ever case is unique.Can you get through all of this without all the machines and gadgets ?What do you do when your loved ones resists treatment?Thank everyone,