ramonachristine
New member
- Joined
- Oct 8, 2011
- Messages
- 2
- Reason
- CALS
- Country
- CA
- State
- bc
- City
- duncan
Hi, long story short.....my brother is home. He was (is) the only ALS person still mobile fully vented and with feeding tube. So we got to take him home after his trache surgery. His energy, after 9 mmonths, has bottomed out. He can still get in and out of bed and use his walker but after only one or two of these events a day, he is wiped out.
He can use his dynawriter to communicate.
\oh, sorry long story short.
We are near Victoria, BC.
We were told that there was help for his spouse with respite care. Someplace that we could go with my brother overnight or for a day or two so his spouse could get some rest. We have funding from VIHA (CSIL) to help with his care needs.
Now we being told by places that they can't take him, he is too complex.... Yet when we were working on his "stay at home plan", we were told that there were places that he could go for a few days once a month or so.
ANY IDEAS? Any experiences?
Also, we have been a through a few home-care helpers. My brother's spouse does the training with help from PROP. My brother is very kind and not hard to get along with. but we are facing some shortfalls.
His spouse is exhausted.
Any ideas of were we can place help wanted ads?
thanks,
LOVE THE BROTHER!
Ramona
He can use his dynawriter to communicate.
\oh, sorry long story short.
We are near Victoria, BC.
We were told that there was help for his spouse with respite care. Someplace that we could go with my brother overnight or for a day or two so his spouse could get some rest. We have funding from VIHA (CSIL) to help with his care needs.
Now we being told by places that they can't take him, he is too complex.... Yet when we were working on his "stay at home plan", we were told that there were places that he could go for a few days once a month or so.
ANY IDEAS? Any experiences?
Also, we have been a through a few home-care helpers. My brother's spouse does the training with help from PROP. My brother is very kind and not hard to get along with. but we are facing some shortfalls.
His spouse is exhausted.
Any ideas of were we can place help wanted ads?
thanks,
LOVE THE BROTHER!
Ramona