gcas
New member
- Joined
- Nov 27, 2011
- Messages
- 3
- Reason
- Loved one DX
- Country
- US
- State
- AK
- City
- Chugiak
My husband was diagnosed in 2009 with Bulbar ALS. We have kept positive all along. We face each day with hope that a cure could be found anytime. He even tried to be put on the clinical trials list but never was successful. I am frustrated now with so many problems. I feel like the hospital he is in just wants me to sit back and wait and give up. and that they are making all the calls on his care. And mostly I fear they just want to stop caring for him and just let him die. I want all that can be done to be done. I would like to know where is the best hospital or hospitals or facilities at for ALS patients. We live in Alaska and might as well be on another planet there are no chapters on anything up here except a very very small MDA office. And they pretty much too have nothing to offer. I am very tired of the people who just because his condition is classed as terminal they treat you and him like you might as well hurry up and die. They have no hope or possitive attitude. I see these cancer center commercials about a possitive attitude. where can you find one like that for ALS patients. If there is a wife out there who has lost her husband and can give me some support I would love to talk with her. also if anyone can help on our other problems too I would appreciate it. His car is most inportant to us.