I need some help

[LaticiaSha]

I have taken an interest in helping people who have ALS and their caregivers. I friend of mine has a husband who was diagnosed 5 years ago and has stressed that there is not a lot of caregiver support in the area we live in. I was hoping to create a support group for caregivers and their families of people who have ALS. If I can do a good job I will give the protocol to the society or try to implement it myself (when I graduate). I was hoping that some of you guys could give me some insight as to what topics you feel should be addressed in such a group. Anything you feel is important is great feedback.

















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[Whitsend]

Start with tricks of the trade (so to speak). Everyone always wants to know how everybody else handles things. i.e.: how do you use the bathroom , what kind foods taste best pureed, how do get in a handicap van without running off the side of the ramp, what improvisations have you made with everyday items to fill a need?

How and what.

There are dozens of different questions for each ALS family.

I think these are good ice breaker questions. Once the group becomes comfortable you can begin to explore questions regarding coping emotionally.

Before I did anything, I'd contact the MDA to find out if they can help coordinate or if they already have something in place that you are unaware of.

Good luck.