Old 11-11-2011, 09:51 PM #1 (permalink)
mysticunicorn66's Avatar
Member
 
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
mysticunicorn66 mysticunicorn66 is offline
Member
mysticunicorn66's Avatar
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
Default Nail beds

What kind of changes do caregivers notice in nail beds to indicate breathing is compromised? Reason I ask is that when I ask sis if she is having problems breathing, she just tells me "sometimes".
mysticunicorn66 is offline  
Old 11-11-2011, 10:17 PM #2 (permalink)
Barbie's Avatar
Extremely Helpful Member
 
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Barbie Barbie is offline
Extremely Helpful Member
Barbie's Avatar
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Default Re: Nail beds

what is a nail bed?
Barbie is offline  
Old 11-11-2011, 10:29 PM #3 (permalink)
New Member (Say Hi)
 
Join Date: 2011
City: Cleveland
State: OH
Country: Uni
Interest: I have been diagnosed with ALS.
Posts: 7
TRACEY'S MOM is on a distinguished road
TRACEY'S MOM TRACEY'S MOM is offline
New Member (Say Hi)
Join Date: 2011
City: Cleveland
State: OH
Country: Uni
Interest: I have been diagnosed with ALS.
Posts: 7
TRACEY'S MOM is on a distinguished road
Default Re: Nail beds

My daughter's nail beds practically disappeared. Noticed that they were diminishing about a year ago. In April of this year, the only one I could easily see was on her right thumb. (ALS started on her left side). Heard something about breathing and nail beds, but never from pulmonary doc.
TRACEY'S MOM is offline  
Old 11-12-2011, 12:48 AM #4 (permalink)
Al's Avatar
Moderator
Forum Moderator
 
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
♥ Al Al is offline
Moderator
Forum Moderator

Al's Avatar
Join Date: 2004
City: NW of Toronto
State: On
Country: CAN
Diagnosed: 10/2003
Interest: I have been diagnosed with ALS.
Posts: 8,028
Al is on a distinguished road
Default Re: Nail beds

If your O2 level is low your nails can have a bluish color. Nail beds are the skin under your nails.

AL.
Al is offline  
Old 11-12-2011, 12:50 AM #5 (permalink)
Member
 
Join Date: 2010
City: Highland
State: CA
Country: US
Diagnosed: 04/2011
Interest: I have been diagnosed with ALS.
Posts: 440
kmendsley is on a distinguished road
kmendsley kmendsley is offline
Member
Join Date: 2010
City: Highland
State: CA
Country: US
Diagnosed: 04/2011
Interest: I have been diagnosed with ALS.
Posts: 440
kmendsley is on a distinguished road
Default Re: Nail beds

Hm I have heard of nail bed's disappearing but only because the color in the nail gets darker and kind of 'takes over' it.

For instance, my nails since I have had breathing issues have almost constantly all been a deep purple...all the way from the inside of the finger to almost the very tip of the nail. I know this is an indicator of poor blood oxygen supply. ...ie. not enough oxygen is flowing in the blood to make it to supply the extremeties. Sometimes it get real bad and turns almost a tinge of blue purple when breathing is being an issue or I am really cold.

If it is always like it then there is not much to judge by. But obviously, if you see all of a sudden that your PALS hands are turning real white and or/ purple and blue on the nails you know there is an oxygen problem and you need to either put her on oxygen or have her take a couple deep slow breaths and see if it helps. If not, call the dr. Hope this helps!
kmendsley is offline  
Old 11-12-2011, 05:35 PM #6 (permalink)
Barbie's Avatar
Extremely Helpful Member
 
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Barbie Barbie is offline
Extremely Helpful Member
Barbie's Avatar
Join Date: 2007
City: orlando
State: FL
Country: US
Diagnosed: 01/2007
Interest: I lost a loved one to ALS/MND.
Posts: 2,672
Barbie is a jewel in the roughBarbie is a jewel in the roughBarbie is a jewel in the rough
Default Re: Nail beds

Ok, I was having a "blond Moment": not to be insensitive but I thought you were talking about a real bed! duh! so sorry!
Barbie is offline  
Old 11-14-2011, 12:22 PM #7 (permalink)
mysticunicorn66's Avatar
Member
 
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
mysticunicorn66 mysticunicorn66 is offline
Member
mysticunicorn66's Avatar
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
Default Re: Nail beds

The reason I ask is that when I checked her hands, from about the middle knuckle to the end of her fingertips are pretty pale white compared to the rest of the finger and hand. Also, nail beds are almost white. I can press on the nail beds lightly and the color does change a small bit. I ask her if she is having trouble breathing and she will say yes. I ask if she wants either the BIPAP or the concentrator put on her, but she always tells me 'No'. Told her that if she is having problems that I could put this on her to help, but then she tells me that she is alright. So, either she is toughing this out and being her usual stubborn self or maybe she wants to go. She told me recently that she can't go on like this and just wants to die.
mysticunicorn66 is offline  
Old 11-14-2011, 12:28 PM #8 (permalink)
mysticunicorn66's Avatar
Member
 
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
mysticunicorn66 mysticunicorn66 is offline
Member
mysticunicorn66's Avatar
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
Default Re: Nail beds

Barbie: LOL that is OK. Probably were wondering what kind of person I am to have her sleeping in a bed of nails. Actually, she would probably say that she would have a reason for hurting if she was sleeping on a bed of nails. That is OK, Barbie, not insensitive at all.

Just wasn't sure what color changes to expect. Of course sis also has cardiomyopathy, so that could be the reason for the color change in fingers coupled with diminished breathing. Her BP has been hovering on the low side. So low, that the hospice nurse was going to contact her dr about lowering her blood pressure med (on it because of the cardiomyopathy to take some of the load off her heart due to that problem).
mysticunicorn66 is offline  
Old 11-14-2011, 03:18 PM #9 (permalink)
Member
 
Join Date: 2011
City: Rochester
State: MN
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 116
Mrs C is on a distinguished road
Mrs C Mrs C is offline
Member
Join Date: 2011
City: Rochester
State: MN
Country: US
Interest: I am a caregiver for someone with ALS/MND.
Posts: 116
Mrs C is on a distinguished road
Default Re: Nail beds

What is it that our PALS hate about that Bipap machine? I would think that being told "you will feel SO MUCH BETTER just having it on" and "you will sleep SO MUCH BETTER once you get used to it" would be enough to convince them to give it a fair try....stubborn is right! haha!
Mrs C is offline  
Old 11-15-2011, 07:23 AM #10 (permalink)
Tom's Support's Avatar
Member
 
Join Date: 2010
City: Leaskdale
State: ON
Country: CA
Diagnosed: 08/2000
Interest: I am a caregiver for someone with ALS/MND.
Posts: 217
Tom's Support is on a distinguished road
Tom's Support Tom's Support is offline
Member
Tom's Support's Avatar
Join Date: 2010
City: Leaskdale
State: ON
Country: CA
Diagnosed: 08/2000
Interest: I am a caregiver for someone with ALS/MND.
Posts: 217
Tom's Support is on a distinguished road
Default Re: Nail beds

I wonder if it would do us CALS any harm to try out the Bipap. Maybe there is something scary about it. My understanding is that it helps you breathe in, and it helps you breathe out. If unconscious and/or unable to breathe at all by ourselves, this would be much comfort, but I can imagine that if there is any inclination at all to breathe on our own, having something do it for us, or something forcing breathing to happen would feel much like suffocation only in reverse. SCUBA diving to me is a little frightening because you are required to have constant air movement especially when ascending and descending to prevent your lungs from exploding. It is unnatural to breathe under water and I do get a sense of suffocation -- frightening. Hmmmmmmm........
I am going to ask to try it so that I understand what Tom is experiencing as best I can.
Tom's Support is offline  
Old 11-15-2011, 08:09 AM #11 (permalink)
Senior Member
 
Join Date: 2010
City: Valley
State: Al
Country: US
Diagnosed: 10/2010
Interest: I lost a loved one to ALS/MND.
Posts: 986
joni51 is on a distinguished road
joni51 joni51 is offline
Senior Member
Join Date: 2010
City: Valley
State: Al
Country: US
Diagnosed: 10/2010
Interest: I lost a loved one to ALS/MND.
Posts: 986
joni51 is on a distinguished road
Default Re: Nail beds

Nail beds was a new one for me too, Barbie I was confused too..lol
joni51 is offline  
Old 11-15-2011, 11:55 AM #12 (permalink)
mysticunicorn66's Avatar
Member
 
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
mysticunicorn66 mysticunicorn66 is offline
Member
mysticunicorn66's Avatar
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
Default Re: Nail beds

@Mrs C: She says the BIPAP makes her breathe deeper that she is used to even before ALS reared its ugly head. They have it set at 12/5. I need to check with the hospice nurse to see if someone can maybe recalibrate it to a setting that would be more comfortable to her.
mysticunicorn66 is offline  
Old 11-15-2011, 01:45 PM #13 (permalink)
Tom's Support's Avatar
Member
 
Join Date: 2010
City: Leaskdale
State: ON
Country: CA
Diagnosed: 08/2000
Interest: I am a caregiver for someone with ALS/MND.
Posts: 217
Tom's Support is on a distinguished road
Tom's Support Tom's Support is offline
Member
Tom's Support's Avatar
Join Date: 2010
City: Leaskdale
State: ON
Country: CA
Diagnosed: 08/2000
Interest: I am a caregiver for someone with ALS/MND.
Posts: 217
Tom's Support is on a distinguished road
Default Re: Nail beds

Good idea. Breathing naturally is easy, breathing with equipment I sense requires a lot of trust. Trust the equipment won't fail, trust the air is good air, trust the equipment won't expand your lungs too much, WOW! As for nail beds - I knew what was up, but I have researched before. More with nail ridges, nail dimples , white spots, nail fungus etc. I wonder why a nail bed would completely disappear? This is a very intriguing topic, I am going to have to google all of this.......
Tom's Support is offline  
Old 11-15-2011, 09:46 PM #14 (permalink)
Jason's Dream's Avatar
Member
 
Join Date: 2010
City: On My Own
State: As Usual
Country: US
Interest: Husband got his freedom from ALS November 6, 2011
Posts: 310
Jason's Dream is on a distinguished road
Jason's Dream Jason's Dream is offline
Member
Jason's Dream's Avatar
Join Date: 2010
City: On My Own
State: As Usual
Country: US
Interest: Husband got his freedom from ALS November 6, 2011
Posts: 310
Jason's Dream is on a distinguished road
Default Re: Nail beds

When they told me Jason had a mere hours, his nail beds were blue to purplish in color. His face was ashen (pale-tanish), and his lips were blue. She tried to get pulses at various points on his legs and listened to lungs and heart... she couldn't find his pulse it was soo inaudible and soft. His BP was 110/54. He lived for 2.5 more days.

Not sure if this helps, but I hope so.
Jason's Dream is offline  
Old 11-16-2011, 09:55 AM #15 (permalink)
mysticunicorn66's Avatar
Member
 
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
mysticunicorn66 mysticunicorn66 is offline
Member
mysticunicorn66's Avatar
Join Date: 2008
City: Allegany County
State: MD
Country: US
Interest: I am a family member of someone with ALS/MND.
Posts: 241
mysticunicorn66 is on a distinguished road
Default Re: Nail beds

Thanks, Becca. yes, it does help. Sis's BP has been really low. She's pale now, but no bluish or purple color yet anywhere. I check her feet and hands often for signs as well. Not eating and drinking much either. Stupid pressure sore on bottom still there (hopefully we can get that fixed). I have been rotating her to her sides as much as I can, not the every two hours though that they recommend though since I have to work. Dad rolls her enough to get some pressure off her, but can manage to get her off of it completely, but I guess every little bit helps.

Thanks for all your help. Helps to know that one has somewhere to turn for some answers. Praying for you Becca, and your children and family.
mysticunicorn66 is offline  
Closed Thread

Tags
bed, breathing, caregivers, ice, problems


Currently Active Users Viewing This Thread: 1 (0 members and 1 guests)
 
Thread Tools Search this Thread
Search this Thread:

Advanced Search

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off
Trackbacks are On
Pingbacks are On
Refbacks are Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
Two beds lgelb Used ALS Equipment for Sale! 0 01-30-2015 06:51 PM
Beds for PALS GregK Tips, Tricks, and Gadgets 3 05-20-2014 05:01 PM
Recommendations for beds mfortier67 Current Caregivers (CALS) 14 09-07-2012 03:22 PM
beds LizT Tips, Tricks, and Gadgets 14 11-08-2011 12:06 PM
Beds and chairs Karvorka People With ALS - "PALS" 2 06-27-2011 02:47 PM
Hospital Beds johnny02 Used ALS Equipment for Sale! 0 08-10-2010 07:23 PM
Question for Vets about Beds Miss Current Caregivers (CALS) 12 08-01-2010 09:25 PM
Has all pals with chalk nail? lovelovelove General Discussion About ALS/MND 8 05-29-2009 02:55 AM
[B] Using Hospital Beds ? ? [/B] JustMe People With ALS - "PALS" 9 02-16-2008 09:25 AM
rotation beds REDNECKCA General Discussion About ALS/MND 0 07-27-2007 04:41 PM


All times are GMT -5. The time now is 03:01 AM.

 

Who we are

"We are a volunteer-driven online community that originated in 2003. We are a resource for anyone affected by ALS and MND. We are a community of like-minded and compassionate individuals. Together we are the ALS Forum and together we build this online resource and online community."

 

Want to help?

Have you found our website helpful? Do you enjoy having a place to talk to people that are knowledgeable about ALS and MND? If you have found it helpful to chat with people at different stages of the ALS/MND journey we encourage you to get involved.

Copyright © 2016