evansmom99
Member
- Joined
- Jun 15, 2011
- Messages
- 26
- Reason
- PALS
- Diagnosis
- 06/2011
- Country
- US
- State
- CO
- City
- Denver
Hello all
Well has been a busy few weeks. Saw a Dr for a 2nd opinion like he wanted and got the same answer with much explaination. Dr was great he pointed out that DH was yelling and pretty dowright mean to me and son. Of course he said no not now to meds, but was refered for Pallative care.
At the Pallative care meeting he once again lashed out and the DR, nurse and SW were great, and he agreed to take the Celexa YEA.... I have seem some changed in his mood and his outburst of anger is much more declined. We left somewhat frustrated due to our wanting hospice, then inpatient but were told there were many criteria for getting hospice and we would need to consider a Nursing home then maybe talk about hospice. So we are going to call a hospice and see what criteria must be met then he is going to do his living will towards getting into hospice. He did a DNR, and is working on his living will be waiting to meet with Hospice first. He has done his POA, and other forms, going to the bank to put me on his account in the next week or two. He made it very clear that he does not want any extra care should he not be able to talk or care for himself.
Pallative team kept talking about Pnumonia with a feeding tube being very common, is this true? He is up in the air about getting one, and my thought is that should he get one he can always refuse it as a part of his plan should he get to the point he does not wish to live anylonger, and it is the time according to his deisre to not be in a position where he can't talk or care for himself.
I am up and down most nights getting him to roll over onto side due to what sounds like a choaking sound. He is choaking easier but still won't give up the food. He has however made sure he always has something to drink and eats slowly. His memory continues to be affected, as is his moods. Can cry so easy and the laughing outburst get in the was of understanding him. Toward the evening I can hardly understand him so I bought him a dry erase board to write notes on. Bad part is his hand writting has always been so bad we may have to revert to using computer.. but will take things as they come.
Take care everyone
Best wishes..
Well that is about it.. best wishes to all...
Well has been a busy few weeks. Saw a Dr for a 2nd opinion like he wanted and got the same answer with much explaination. Dr was great he pointed out that DH was yelling and pretty dowright mean to me and son. Of course he said no not now to meds, but was refered for Pallative care.
At the Pallative care meeting he once again lashed out and the DR, nurse and SW were great, and he agreed to take the Celexa YEA.... I have seem some changed in his mood and his outburst of anger is much more declined. We left somewhat frustrated due to our wanting hospice, then inpatient but were told there were many criteria for getting hospice and we would need to consider a Nursing home then maybe talk about hospice. So we are going to call a hospice and see what criteria must be met then he is going to do his living will towards getting into hospice. He did a DNR, and is working on his living will be waiting to meet with Hospice first. He has done his POA, and other forms, going to the bank to put me on his account in the next week or two. He made it very clear that he does not want any extra care should he not be able to talk or care for himself.
Pallative team kept talking about Pnumonia with a feeding tube being very common, is this true? He is up in the air about getting one, and my thought is that should he get one he can always refuse it as a part of his plan should he get to the point he does not wish to live anylonger, and it is the time according to his deisre to not be in a position where he can't talk or care for himself.
I am up and down most nights getting him to roll over onto side due to what sounds like a choaking sound. He is choaking easier but still won't give up the food. He has however made sure he always has something to drink and eats slowly. His memory continues to be affected, as is his moods. Can cry so easy and the laughing outburst get in the was of understanding him. Toward the evening I can hardly understand him so I bought him a dry erase board to write notes on. Bad part is his hand writting has always been so bad we may have to revert to using computer.. but will take things as they come.
Take care everyone
Best wishes..
Well that is about it.. best wishes to all...
