Atsugi
Moderator emeritus
- Joined
- Jan 11, 2011
- Messages
- 5,921
- Reason
- Lost a loved one
- Diagnosis
- 12/2010
- Country
- US
- State
- FL
- City
- Orlando
Next stage is here already. Bummer. On the other hand…I see some silver linings.
Krissy’s final finger has lost its last muscle, so I feed her every bite and hold her straws for every sip. Thank goodness for bent spoons, fat forks and 24-inch long straws. We look like quite a curiosity in restaurants, using our own spill-resistant dish and the blue Dysem material that prevents dishes from sliding around the table.
Krissy’s brother and sisters are here from way up north, visiting, laughing and joking. Glad to see they’ll have a good final image of her to remember.
I finally got coordinated wiping her private parts from front-to-back after toileting, and we learned that the toilet reservoir sprang a leak because I kept running the rolling toilet chair into it.
The kids don't look relaxed in the back seat of the Braun-modified Honda Odyssey, so they lay on the floor and wrestle while I drive. On the plus side, this ALS has brought the kids even closer together.
On the brighter side, when Krissy is no longer with us, I can sell the van and get a BMW-Z4 convertable 2-seater.
We discovered that Zyrtec comes in crushable form, and found that it’s the cinnamon, not just the sugar, in apple sauce that helps the medicine taste not-so-bad.
But the CoughAssist machine is a consternation. It brings up phlegm, but then it just hangs mid-throat for hours, and Krissy gets red and hoarse trying to cough it up.
Also, she often can’t hold her head up. Thank the Lord that the kids can be with her all afternoon after the HH aide leaves while I’m still at work.
(Better get those Advance Directives signed and notarized soon.)
Krissy’s final finger has lost its last muscle, so I feed her every bite and hold her straws for every sip. Thank goodness for bent spoons, fat forks and 24-inch long straws. We look like quite a curiosity in restaurants, using our own spill-resistant dish and the blue Dysem material that prevents dishes from sliding around the table.
Krissy’s brother and sisters are here from way up north, visiting, laughing and joking. Glad to see they’ll have a good final image of her to remember.
I finally got coordinated wiping her private parts from front-to-back after toileting, and we learned that the toilet reservoir sprang a leak because I kept running the rolling toilet chair into it.
The kids don't look relaxed in the back seat of the Braun-modified Honda Odyssey, so they lay on the floor and wrestle while I drive. On the plus side, this ALS has brought the kids even closer together.
On the brighter side, when Krissy is no longer with us, I can sell the van and get a BMW-Z4 convertable 2-seater.
We discovered that Zyrtec comes in crushable form, and found that it’s the cinnamon, not just the sugar, in apple sauce that helps the medicine taste not-so-bad.
But the CoughAssist machine is a consternation. It brings up phlegm, but then it just hangs mid-throat for hours, and Krissy gets red and hoarse trying to cough it up.
Also, she often can’t hold her head up. Thank the Lord that the kids can be with her all afternoon after the HH aide leaves while I’m still at work.
(Better get those Advance Directives signed and notarized soon.)