How do you get it across to people that caregiving is a "constant?" I mean, who do they think bathes, dresses, feeds and tends to their loved one's needs?
Rhetorical questions, really.
Why do they think I would want to do all of that and then take him to a party, where all I do is watch him like a hawk, interpret for him and help with personal care, while they are all having a grand ole time? Then we go home - back to our reality.
The level of care has increased significantly and I've noticed that his invitations from friends now "include" me.
(Maybe I'm just a little sensitive at the moment, but I've been sick and feel like I'm going to lose my mind.)
Plan your damn party, but don't guilt me into bringing myself and my husband! One of his friends called me and practically demanded to know if I would bring my husband to a get together in August, so he could "plan things." "All his friends from high school will be there and everyone is so busy and spread out, we need to know if he can come." He threw out a few names and stated where they would be coming from and how it's such a long way to our house and his house would be a better option. Blah, blah, blah...(These people get together several times a year, with or without my husband.) Before, someone would have picked him up and he could have spent the night. Guess that offer is off the table now.
Instead of a party, I'd just like someone to come sit with him or better yet, spray our yard for weeds or cut the grass or do a load of clothes or vacuum or dust or help with a repair or at least ask if they could help us with anything!
Yes, party on, dudes! You do that! :roll:
Rhetorical questions, really.
Why do they think I would want to do all of that and then take him to a party, where all I do is watch him like a hawk, interpret for him and help with personal care, while they are all having a grand ole time? Then we go home - back to our reality.
The level of care has increased significantly and I've noticed that his invitations from friends now "include" me.
(Maybe I'm just a little sensitive at the moment, but I've been sick and feel like I'm going to lose my mind.)
Plan your damn party, but don't guilt me into bringing myself and my husband! One of his friends called me and practically demanded to know if I would bring my husband to a get together in August, so he could "plan things." "All his friends from high school will be there and everyone is so busy and spread out, we need to know if he can come." He threw out a few names and stated where they would be coming from and how it's such a long way to our house and his house would be a better option. Blah, blah, blah...(These people get together several times a year, with or without my husband.) Before, someone would have picked him up and he could have spent the night. Guess that offer is off the table now.
Instead of a party, I'd just like someone to come sit with him or better yet, spray our yard for weeds or cut the grass or do a load of clothes or vacuum or dust or help with a repair or at least ask if they could help us with anything!
Yes, party on, dudes! You do that! :roll:
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