jillg
Member
- Joined
- Mar 14, 2009
- Messages
- 18
- Reason
- Loved one DX
- Diagnosis
- 02/2009
- Country
- US
- State
- wisc
- City
- Bonduel
Hi all,
My dad was ALS diagnosis with bulbar ALS in Feb 2009 & got his PEG and Trach 11 months later. He is now in what we believe are his final days with us. I'm frustrated that even after all this time and all the pain he has suffered, he just can't go to be with Jesus. I've been at his bedside for almost 2 weeks and have witnessed the breakdown of his body. I didn't think it could get any worse and it has. Pray for my Dad and my family. Hospice can tell us nothing (how long) because they "are not experinced in ALS". If I had a dime for everytime we've heard that one.
My dad was ALS diagnosis with bulbar ALS in Feb 2009 & got his PEG and Trach 11 months later. He is now in what we believe are his final days with us. I'm frustrated that even after all this time and all the pain he has suffered, he just can't go to be with Jesus. I've been at his bedside for almost 2 weeks and have witnessed the breakdown of his body. I didn't think it could get any worse and it has. Pray for my Dad and my family. Hospice can tell us nothing (how long) because they "are not experinced in ALS". If I had a dime for everytime we've heard that one.