BlueSeattle
Member
- Joined
- May 7, 2011
- Messages
- 17
- Reason
- CALS
- Country
- US
- State
- WA
- City
- Seattle area
I hope nobody minds... below are somewhat random jumbled thoughts....
My wife was officially diagnosed with ALS about 3 weeks ago... though she's asking for a second opinion. We first learned about ALS about 2 years ago when she went into the dr about her leg. It was smaller than her left and it would get tired after walking a lot, but there was no pain. They did a bunch of tests and saw no progression in the muscle loss so we thought we'd dodged a bullet. Then in the span of only about 6 months her mother went from being totally healthy to passing away of ALS. We were already planning to get married and she didn't make it to the wedding. :-S
Her doc is one of the best on the west coast our only hope is that he's so focused on ALS that he's being narrow minded and missed something. Unlikely, but at least it's hope and that's what I look for now.
Looking back my wife says the first symptoms started about 4 years ago when she was in a workout class and couldn't stand on her toes... She didn't think much of it then. That was before we'd met. I'm 30, she's 38.
Right now she can walk, but with a limp. We just moved into an ADA apartment from my 3 story townhouse as stairs are beginning to be a problem.
My wife is an athiest while I was Christian who's now lost his faith. Even if he does exist, I'd only want to meet him to strangle him for this torture. Funny, she asked me the other day about going to church... Her words "It can't hurt."
I don't know what to think... her symptioms aren't typical, it's moving very slow, but it is progressing. Every time I see her stretch her right arm, inside, I freak out thinking it's spread. When she hands me a jar to open, I question to myself if she's getting weaker. How much longer can she drive? Should I get a hand operated car? Having to short-sell my condo, my credit is wrecked so I can't even afford one. What do I do in the future when it's worse? I can work from home from time to time, but she's going to need full time care and I can't afford that. We've got family in the area but even then.....
Anyway, before I drive myself crazy, I just wanted to introduce myself.
My wife was officially diagnosed with ALS about 3 weeks ago... though she's asking for a second opinion. We first learned about ALS about 2 years ago when she went into the dr about her leg. It was smaller than her left and it would get tired after walking a lot, but there was no pain. They did a bunch of tests and saw no progression in the muscle loss so we thought we'd dodged a bullet. Then in the span of only about 6 months her mother went from being totally healthy to passing away of ALS. We were already planning to get married and she didn't make it to the wedding. :-S
Her doc is one of the best on the west coast our only hope is that he's so focused on ALS that he's being narrow minded and missed something. Unlikely, but at least it's hope and that's what I look for now.
Looking back my wife says the first symptoms started about 4 years ago when she was in a workout class and couldn't stand on her toes... She didn't think much of it then. That was before we'd met. I'm 30, she's 38.
Right now she can walk, but with a limp. We just moved into an ADA apartment from my 3 story townhouse as stairs are beginning to be a problem.
My wife is an athiest while I was Christian who's now lost his faith. Even if he does exist, I'd only want to meet him to strangle him for this torture. Funny, she asked me the other day about going to church... Her words "It can't hurt."
I don't know what to think... her symptioms aren't typical, it's moving very slow, but it is progressing. Every time I see her stretch her right arm, inside, I freak out thinking it's spread. When she hands me a jar to open, I question to myself if she's getting weaker. How much longer can she drive? Should I get a hand operated car? Having to short-sell my condo, my credit is wrecked so I can't even afford one. What do I do in the future when it's worse? I can work from home from time to time, but she's going to need full time care and I can't afford that. We've got family in the area but even then.....
Anyway, before I drive myself crazy, I just wanted to introduce myself.