CoachMeg
Distinguished member
- Joined
- Mar 4, 2011
- Messages
- 209
- Reason
- Loved one DX
- Diagnosis
- 02/2011
- Country
- US
- State
- CA
- City
- Roseville
My husband has an appointment with his neuro tomorrow. I cannot go with him as I don't have any leave days remaining for the school year. As it is a two hour drive, his sister has generously offered to take him.
However, I want to send a list of concerns and questions along with them for the doctor to address. Now that I am sitting here at lunch, it all seems a jumble. Can you help me find the right words and questions?
Here is where we are so far: Officially diagnosed in February of 2011. Still mobile, although weakness has increased in both legs, from just the left leg before. He stumbles and falls much more often. I have noticed he gets short of breath a lot more quickly. He coughs a lot during the night and I notice changes in his breathing patterns at night too. He is also getting weaker in his arms. Last time he got on the scale he was down 5 pounds. I asked him to do it again and he won't, but am pretty sure he has lost even more weight. I realize this is to be expected with muscle mass loss. His appetite seems to be the same, which is a plus. No speech difficulties that I can tell.
Question I have so far is in regard to the coughing and shortness of breath. I am asking the doc at what point we need to be concerned or monitoring his oxygenation and lung function.
And then I am at a loss. I feel like there are a million questions to ask, but can't formulate them.
Help or advice would be greatly appreciated. If I am simply being an paranoid, overprotective wife.....well you can tell me that too. Just be gentle.
Love and light
Meg
However, I want to send a list of concerns and questions along with them for the doctor to address. Now that I am sitting here at lunch, it all seems a jumble. Can you help me find the right words and questions?
Here is where we are so far: Officially diagnosed in February of 2011. Still mobile, although weakness has increased in both legs, from just the left leg before. He stumbles and falls much more often. I have noticed he gets short of breath a lot more quickly. He coughs a lot during the night and I notice changes in his breathing patterns at night too. He is also getting weaker in his arms. Last time he got on the scale he was down 5 pounds. I asked him to do it again and he won't, but am pretty sure he has lost even more weight. I realize this is to be expected with muscle mass loss. His appetite seems to be the same, which is a plus. No speech difficulties that I can tell.
Question I have so far is in regard to the coughing and shortness of breath. I am asking the doc at what point we need to be concerned or monitoring his oxygenation and lung function.
And then I am at a loss. I feel like there are a million questions to ask, but can't formulate them.
Help or advice would be greatly appreciated. If I am simply being an paranoid, overprotective wife.....well you can tell me that too. Just be gentle.
Love and light
Meg
