Ryan's Wife, I also was diagnosed in April of last year, with the same issues, and kept thinking that it couldn't possibly be true, it had to X, Y or Z instead. So I went to the ALS specialists, ran all kinds of tests, ruled out a whole lot of X, Y and Z, and those damn initials ALS still are around! Nothing like wishing for a disease like Lyme, and being disappointed.
I don't know how old your kids are, do they know his diagnosis? I haven't told my 2 sons the actual diagnosis name, but only that my legs aren't going to get better, but worse. They used to groan when I started using a cane, but after I chased them around a Target store in the little scooter, oh well, I digress. I'm still dealing with the facts, and feel perfectly fine when I'm sitting down. It's when I stand up and try to walk that it hits me in the face again. Your husband may just be scared of going out, falling, showing weakness in front of his kids and people, who though well-meaning, ask "what happened?..." I just tell people that I have some neurological problems with my legs, and it's gotten worse. But I do have to plan ahead and choose what I'll exhert my energy on during the day.
I don't know about your husband, but I keep telling myself, that "I'm still me" whether or not my legs are going to support me or not... and that I'm on the at least 10-year plan, as I want to see my kids grow up (they're 11, 14 and 17). That's the scariest part for me, leaving my kids, as I've been blessed to still have my highly adored Mom around (she's 85) and in better shape than I am at this point.
Is he still working at all? If not, is there something he can do to keep his mind and body going? If you don't use it, you're going to lose it". If he's on the computer, has he gone on this site at all? I was on this site for more than 8 months before I became a member, just lurking around and reading.
Good luck, he's lucky to have you and your kids... I hope he learns to live the rest of his life!
HelenL