CoachMeg
Distinguished member
- Joined
- Mar 4, 2011
- Messages
- 209
- Reason
- Loved one DX
- Diagnosis
- 02/2011
- Country
- US
- State
- CA
- City
- Roseville
Hello and a big thank you! I have been reading many, many of your posts in all of the forums and am so glad that I have found this group.
My husband is 43 and recently diagnosed with ALS. The original diagnosis was late December 2010 with confirmation February 2, 2011. Definitely a date that will forever be engraved in my memories. It began with a limp and a diagnosis of foot drop. He has been taking Rilutek for about a month now. He has been progressing, although I would not call it dramatic. His legs are weaker but he is still driving and trying to work. It is still a lot faster than I would like it to be.
We do have some familliarity with ALS as my father in law passed away from the disease. It is unfortunate that he progressed so quickly - 9 months from diagnosis. We do not have a diagnosis of familial ALS although the test has been run. It takes on average 3 months to get the results. Although, it doesn't change our course.
We have two children - soon to be 10 and 5 and a half. They are the light of our lives and have provided much needed comfort and focus as we try to plan our future. We are living life to its fullest and are making memories for us all to cherish.
I am a librarian and a researcher by nature, which is how I happened upon this forum. I look forward to getting to know all of you as we share this crazy path of ALS.
Love and light to all
Meg
My husband is 43 and recently diagnosed with ALS. The original diagnosis was late December 2010 with confirmation February 2, 2011. Definitely a date that will forever be engraved in my memories. It began with a limp and a diagnosis of foot drop. He has been taking Rilutek for about a month now. He has been progressing, although I would not call it dramatic. His legs are weaker but he is still driving and trying to work. It is still a lot faster than I would like it to be.
We do have some familliarity with ALS as my father in law passed away from the disease. It is unfortunate that he progressed so quickly - 9 months from diagnosis. We do not have a diagnosis of familial ALS although the test has been run. It takes on average 3 months to get the results. Although, it doesn't change our course.
We have two children - soon to be 10 and 5 and a half. They are the light of our lives and have provided much needed comfort and focus as we try to plan our future. We are living life to its fullest and are making memories for us all to cherish.
I am a librarian and a researcher by nature, which is how I happened upon this forum. I look forward to getting to know all of you as we share this crazy path of ALS.
Love and light to all
Meg
