Teej
Active member
- Joined
- Sep 28, 2006
- Messages
- 39
- Reason
- Loved one DX
- State
- CA
- City
- San Jose
My husband has ALS and continually has cold feet. We live in California, so it never really gets that cold, but his feet, even on the 100 degree days, are freezing. Any ideas on what to do for him? Also, does anyone get regular massages or have regular stretching sessions? My husband has been having stretching sessions, and afterward, his joints really ache...Does anyone have joint pain? If so, what do you do for the pain?
Also, we are planning on traveling back East to see my daughter perform in an opera in mid-November. It's a long flight, so does anyone have any helpful hints as to how to make things more comfy for him? He gets very uncomfortable sitting up for longer than an hour. He is at the stage where he can walk very very little and is in a wheelchair full time, his left arm has atrophied a great deal, swallowing pills and liquids are hard for him, but regular food is ok still. He cries uncontrollably and yawns all the time which sends his jaw into spasms, and is at below 50% lung capacity now. We are due to travel next month, so I am praying really hard that he is able to go. Any travel tips would be much appreciated.
Also any hints for avoiding viruses besides the flu shot and pneumonia shot?
Wow! I had a lot of questions! I am really excited about his group! I am finding the best information we are getting so far is from other PALS, so I really appreciate you all taking the time to read this and answer....Blessings to everyone in your daily journies, Teej
Also, we are planning on traveling back East to see my daughter perform in an opera in mid-November. It's a long flight, so does anyone have any helpful hints as to how to make things more comfy for him? He gets very uncomfortable sitting up for longer than an hour. He is at the stage where he can walk very very little and is in a wheelchair full time, his left arm has atrophied a great deal, swallowing pills and liquids are hard for him, but regular food is ok still. He cries uncontrollably and yawns all the time which sends his jaw into spasms, and is at below 50% lung capacity now. We are due to travel next month, so I am praying really hard that he is able to go. Any travel tips would be much appreciated.
Also any hints for avoiding viruses besides the flu shot and pneumonia shot?
Wow! I had a lot of questions! I am really excited about his group! I am finding the best information we are getting so far is from other PALS, so I really appreciate you all taking the time to read this and answer....Blessings to everyone in your daily journies, Teej