jmaycavagnol
Member
- Joined
- Feb 9, 2011
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 01/2011
- Country
- US
- State
- TX
- City
- Spring
My mom was diagnosed with ALS on January 14, 2011 after almost a year of tests ruling out all of other illnesses. She is having problems with upper body strength, has neck pain and is losing her fine motor skills. Her speech is slurred almost as if she has had a stroke and she has fallen several times.
She will be 74 years old this August and she lives alone in Indiana and I am in Houston. I have two brothers who live within 30 minutes of her and despite their close proximity are not involved in her life on a regular basis. She wants to move to Houston after living in the same city for 34 years and I have begun the process of trying to find her a place to live and sell her home.
I am so angry and full of grief that I am increasingly irritable at work and at home and I don't want to do anything but scream or punch a hole in a wall but I refrain from both. I can't sleep through the night and I am consumed by anger.
I am overwhelmed with Medicare, Medicaid, and Medical Directives.
My mom is worried that I will take her car away and has begun lying about her capabilites for fear of losing her independence.
My brothers have announced they are "broke" and their schedules are very busy--I am assuming that this means that I will be my mom's primary caretaker.
I am consumed with anger and snap at people and walk around with a scowl on my face all day and all night long.
I just don't know how to cope right now and I am full of guilt about our very bumpy mother-daughter relationship and I am so very scared about the responsibilities of being her care-giver as well. I am terrified of watching her progress and I do not even know how I will handle it when she dies.
I feel completely alone even though I have an amazingly supportive boyfriend and very caring friends. I am so angry at my brothers and I have some friends who are unable to handle this news.
I have contacted the Houston ALS Chapter and will be attending the local support groups and we are going to be participating in some fundraising events.
I just don't know how to cope with my mom's diagnosis and be strong for her at the same time...everyday I think that this may be the last time that I talk to her.
I can't even imagine what she is going through and I feel so selfish having all of these emotions when she is the one with this awful disease.
She will be 74 years old this August and she lives alone in Indiana and I am in Houston. I have two brothers who live within 30 minutes of her and despite their close proximity are not involved in her life on a regular basis. She wants to move to Houston after living in the same city for 34 years and I have begun the process of trying to find her a place to live and sell her home.
I am so angry and full of grief that I am increasingly irritable at work and at home and I don't want to do anything but scream or punch a hole in a wall but I refrain from both. I can't sleep through the night and I am consumed by anger.
I am overwhelmed with Medicare, Medicaid, and Medical Directives.
My mom is worried that I will take her car away and has begun lying about her capabilites for fear of losing her independence.
My brothers have announced they are "broke" and their schedules are very busy--I am assuming that this means that I will be my mom's primary caretaker.
I am consumed with anger and snap at people and walk around with a scowl on my face all day and all night long.
I just don't know how to cope right now and I am full of guilt about our very bumpy mother-daughter relationship and I am so very scared about the responsibilities of being her care-giver as well. I am terrified of watching her progress and I do not even know how I will handle it when she dies.
I feel completely alone even though I have an amazingly supportive boyfriend and very caring friends. I am so angry at my brothers and I have some friends who are unable to handle this news.
I have contacted the Houston ALS Chapter and will be attending the local support groups and we are going to be participating in some fundraising events.
I just don't know how to cope with my mom's diagnosis and be strong for her at the same time...everyday I think that this may be the last time that I talk to her.
I can't even imagine what she is going through and I feel so selfish having all of these emotions when she is the one with this awful disease.