Cathyssister
New member
- Joined
- Nov 3, 2010
- Messages
- 1
- Reason
- Loved one DX
- Diagnosis
- 09/2010
- Country
- US
- State
- Pennsylvania
- City
- Monroeville
Hi Everyone,
I am Cindi, Cathy's sister. I have been reading this forum since September 2, when she was told she has "It", AlS. You all have helped me and her so much. It started in her left shoulder last January, by March she was on short term disability, by September she had lost the use of her left arm and hand, and was walking with difficulty. Now she is in a wheelchair, can no longer take care of her self in any way. She is married and a mother to two boys, 17 and 14. She is my little sister and best friend. I have always taken care of her, made things better and I can't do that now. She is in so much pain, is that normal? I understand there is no normal with this monster that has a death grip on her, but do others have such pain? How can I help her? She hates to take pain meds, she says it slows her down, her movements what little she has. She is having a hard time talking now also. She still loves to eat and can do that, but someone has to feed her. Her hands and wrists hurt most of all, even if they are slightly bumped. She recently had a catheter placed and is experiencing terrible pain. My sister has never had a very high pain tolerance so I guess I am wondering, is this pain real or is it her low tolerance. I have been told there isn't much pain with ALS, but there sure seems to be with Cathy. Thanks so much for all your help and information I have already gotten here.
I am Cindi, Cathy's sister. I have been reading this forum since September 2, when she was told she has "It", AlS. You all have helped me and her so much. It started in her left shoulder last January, by March she was on short term disability, by September she had lost the use of her left arm and hand, and was walking with difficulty. Now she is in a wheelchair, can no longer take care of her self in any way. She is married and a mother to two boys, 17 and 14. She is my little sister and best friend. I have always taken care of her, made things better and I can't do that now. She is in so much pain, is that normal? I understand there is no normal with this monster that has a death grip on her, but do others have such pain? How can I help her? She hates to take pain meds, she says it slows her down, her movements what little she has. She is having a hard time talking now also. She still loves to eat and can do that, but someone has to feed her. Her hands and wrists hurt most of all, even if they are slightly bumped. She recently had a catheter placed and is experiencing terrible pain. My sister has never had a very high pain tolerance so I guess I am wondering, is this pain real or is it her low tolerance. I have been told there isn't much pain with ALS, but there sure seems to be with Cathy. Thanks so much for all your help and information I have already gotten here.