ccjjcc
Active member
- Joined
- Jul 18, 2010
- Messages
- 88
- Reason
- Loved one DX
- Diagnosis
- 08/2010
- Country
- US
- State
- XX
- City
- where it's green
see other thread about his trach things....General Discussion About ALS/MND - ALS/MND Support Group Forums It's been kind of a nightmare for him, just the whole thing, with
the bipap not working, then getting the trach and then not venting him right away. It's
been an ordeal and I hurt for him and I love him and am trying to be here.
But it has been really hard. If I go home, I feel bad that I'm not here (at ICU) looking
over him. When I'm here I'm glad I'm here for him. Although I can't get any sleep at
night. (we're in a big room with a chair/bed).
My job picked this week to schedule me more hours than I can work, because "they" are
on vacations or off for New Year's eve and day. Just load me right up. And they have
been without any compassion at all. I let my boss know last week I might not be able
to work all the hours he had me scheduled for, depending on my brother's situation, and
he seemed fine with it. Then we get into this week and he's wanting to know ahead of
time. How can I know ahead of time when he's going to be in distress? Or moved back
to the nursing home? So I'm going to gut it thru the next few days and be over here too
and not get much sleep. It ticks me off. I feel like quitting the job.
Meanwhile, my brother is a 24 hour job as far as constantly needing attention. If it isn't
one thing it's another. I feel bad for him but he's so negative and angry. He gets mad to the point where he is fighting against the trach and insisting on it going his way. I'm trying to make it better but it doesn't help.
Mainly, though, I'm just mad about work not having any sympathy at or offering any
work-arounds for me over the next week.
make it better, but I can't seem to, and I'm trying.
the bipap not working, then getting the trach and then not venting him right away. It's
been an ordeal and I hurt for him and I love him and am trying to be here.
But it has been really hard. If I go home, I feel bad that I'm not here (at ICU) looking
over him. When I'm here I'm glad I'm here for him. Although I can't get any sleep at
night. (we're in a big room with a chair/bed).
My job picked this week to schedule me more hours than I can work, because "they" are
on vacations or off for New Year's eve and day. Just load me right up. And they have
been without any compassion at all. I let my boss know last week I might not be able
to work all the hours he had me scheduled for, depending on my brother's situation, and
he seemed fine with it. Then we get into this week and he's wanting to know ahead of
time. How can I know ahead of time when he's going to be in distress? Or moved back
to the nursing home? So I'm going to gut it thru the next few days and be over here too
and not get much sleep. It ticks me off. I feel like quitting the job.
Meanwhile, my brother is a 24 hour job as far as constantly needing attention. If it isn't
one thing it's another. I feel bad for him but he's so negative and angry. He gets mad to the point where he is fighting against the trach and insisting on it going his way. I'm trying to make it better but it doesn't help.
Mainly, though, I'm just mad about work not having any sympathy at or offering any
work-arounds for me over the next week.
make it better, but I can't seem to, and I'm trying.