Laurie Staller
Active member
- Joined
- Jul 8, 2010
- Messages
- 48
- Reason
- Loved one DX
- Diagnosis
- 07/2009
- Country
- CA
- State
- ontario
- City
- kitchener
Hi everyone.....just have a couple of questions since I last checked in. My sister's breathing has gotten worse, not only when she's awake, but at rest as well. She is not on any breathing aids at all. It seems to me that since she has been diagnosed, she is not a priority anymore.....we have such a hard time even getting her a puffer. In fact, she had an appointment in the London University hospital with one of the specialists, and they phoned and cancelled her appointment because they were too busy. Can you believe that? She has had many tests done, and nothing reallly shows anything concrete....whatever that means. At first, we thought the breathing issue was from anxiety, but she is on Ativan.....which has helped with the anxiety, but not the breathing issues. She has constant acid reflux, and is on Gaviston. She has tried other meds. for this, but nothing seems to help. She is having great difficulty speaking.....and also makes a contstant noise that comes from her throat. I don't know if this is caused from the acid reflux, or if the muscles are being affected that help her clear her throat...maybe that's what she's trying to do. As my sister is in denial, I can't talk to her about these things, so am hoping that maybe someone from the forum can make things a little clearer for me. I appreciate any information you may have...God Bless...Laurie