mytwoboys
Active member
- Joined
- Jun 10, 2009
- Messages
- 72
- Country
- US
- State
- OH
- City
- Canal Winchester
Hi all. I don't post much, but I lurk and read quite a bit. Diagnosed in May 2007, my husband's condition has deteriorated to the point where "we" (aides during the day and me at night and on weekends) just could not manage it anymore. He has been "locked in" for 14 months, his breathing is poor, he has lost most of the control of his bodily functions, his muscles are so tight that any movement to change clothes, clean him, etc. is very very very difficult. I, for the most part, was having a nervous breakdown. He requires so much more attention than I could give him at home - there was only one of me off-hours and the aides were worthy of their pay only about 70% of the times they did show up. Anyway, hospice has moved him to their in-patient facility. It is almost as expensive as a decent nursing home, but probably nicer. I guess we are lucky they had a bed. I am self-paying. Thankfully he's got a 401k I can cash in.
Anyway... I still feel like a failure - I somehow couldn't manage it all. Guess I'm fishing for words of encouragement. I have "friended" and been "friended" by a number of you here and wanted to give you an update. I am not used to failure. It hurts more because I failed him. Thanks for listening.
Anyway... I still feel like a failure - I somehow couldn't manage it all. Guess I'm fishing for words of encouragement. I have "friended" and been "friended" by a number of you here and wanted to give you an update. I am not used to failure. It hurts more because I failed him. Thanks for listening.