christal
New member
- Joined
- Sep 28, 2010
- Messages
- 1
- Reason
- CALS
- Diagnosis
- 04/2010
- Country
- US
- State
- AR
- City
- harrison
well i am 32, my husband is also and he has rapidly progressing als. he showed symptoms just as our daughter was born last september, in april this year he was diagnosed. we have a 3 year old boy and maggie just turned one. i am an RN from Australia, and this should make it all easier, but our marriage has problems, now we are no longer together as husband and wife for many reasons, but i am here, caring for him. he lost his job after diagnosis when our baby was 2 weeks old. with no health insurance we returned to australia for a few months where he had a peg inserted and resting splints for hands and legs custom made, bipap sorted and phsyio techniques learned. yesterday he used a urinal for the first time. he fell two days ago and needed 6 staples to the back of his head. he is in a motorized wheelchair and I do all his adl's. (shower assist ect). i feel broken. i am sad and i want it to end. i want him to have peace, which he does not have with me, our children give him the most joy and love and above all, he will always be a better more loving man than myself. if there is anyone else out there with young ones like me, it would be nice to chat. although from what i hear everyone is totally in love with their spouse, totally devoted and their world will be forever devistated if they die. this is not me.