mybrotherwes
New member
- Joined
- Aug 10, 2010
- Messages
- 5
- Reason
- Loved one DX
- Diagnosis
- 09/2010
- Country
- US
- State
- USA
- City
- Texarkana
Hi Everyone! I am new here and it looks like I will be visiting quite often. My brother Wes, age 56, has been suffering from the ALS symptoms for at least a year, maybe longer. He had a final MRI last week and we finally received the results yesterday. He does have ALS. He hasn't been able to talk for a year, just grunts. He cannot hold his head up at all. He constantly complains (in writing) that he is suffocating. When they check his oxygen level they say it is fine. Can anyone tell me why he feels like he is suffocating? I am thinking maybe it is from anxiety? I am worried that he really is having a hard time breathing and no one is paying attention to him. He is in a nursing home but I am seriously considering bringing him home with me and my husband. He eats very little. When he does eat it is yogurt, pudding, applesauce, etc. He prefers to just drink Ensure & Boost, but the doctor at the nursing home insists that he needs to eat food (pureed) before he can drink an Ensure or Boost. I have a lot of questions, but I have already found many answers. I have been in contact with the MDA/ALS Association. I am just waiting to hear from them. Thanks to all for any information and/or advice. I am praying for everyone that has been touched with this terrible disease. Pam