DCL1964
Active member
- Joined
- Mar 22, 2010
- Messages
- 37
- Reason
- CALS
- Country
- US
- State
- VIRGINIA
- City
- WOODBRIDGE
My brother Allan was diagnosed with ALS this year. He lives with me in a house our parents and I owned together before they died. I'm having problems accepting this diagnosis. The doctors we have seen so far at VCU and Georgetown don't seem to listen to their patients. Everyone has to send in their residents to ask questions and perform tests that in my opinion the head doctor should be doing. I feel like there is something we're not telling them or that we're not saying properly. I'm getting angry at what I'm feeling is a good waste of our time. My brother is talking about going to see someone at Johns Hopkins soon and I'm hoping someone will take the time and listen or ask us questions. It seems like when one doctor diagnoses ALS and you go to get a second opinion and that doctor asks what the first doctor diagnosed and you say ALS they don't even want to look at any tests or try any new tests, they just simply agree. My brother has been laying in a bed in my home since June 2007 wasting away. He can still walk and talk. He has some symptoms of ALS and some that none of these doctors have ever addressed. I read alot of posts on this forum and I read up on alot of what everyone asks questions about, hoping something will lead me to some answers for my brother and me.