Tony1739
New member
- Joined
- Feb 28, 2010
- Messages
- 5
- Reason
- Loved one DX
- Country
- US
- State
- CT
- City
- Ridgefield
Hi everyone,
First post
My mom was diagnosed with bulbar onset ALS 2/11/10. She has a very difficult time speaking and eating and some weakness in her hands. She is still in good spirits (on the surface anyway). She is very against a feeding tube and anything else for that matter. We bring her to the ALS Doc every 2 months or so. After each visit she seems more and more bummed out. My question is, is there a value in continued visits to the ALS clinic if mom wants no advanced treatments? We are in no way giving up, but on the other hand it seems she is happy just living her life. If there is a value I we well continue to convince her to go. Obviously we want to respect her wishes, and we have not had this conversation with her yet. My feeling is I want her to be happy and comfortable. Right now it seems that staying away from the clinic is what will keep her that way. I just don't know what is the right choice.
I have been reading the forums since Feb. You all are great and have helped me tremendously.
Thanks
First post
My mom was diagnosed with bulbar onset ALS 2/11/10. She has a very difficult time speaking and eating and some weakness in her hands. She is still in good spirits (on the surface anyway). She is very against a feeding tube and anything else for that matter. We bring her to the ALS Doc every 2 months or so. After each visit she seems more and more bummed out. My question is, is there a value in continued visits to the ALS clinic if mom wants no advanced treatments? We are in no way giving up, but on the other hand it seems she is happy just living her life. If there is a value I we well continue to convince her to go. Obviously we want to respect her wishes, and we have not had this conversation with her yet. My feeling is I want her to be happy and comfortable. Right now it seems that staying away from the clinic is what will keep her that way. I just don't know what is the right choice.
I have been reading the forums since Feb. You all are great and have helped me tremendously.
Thanks