Tspiz - I am so very sorry to hear about your husband. You have come to a wonderful place, however. Everyone here is incredible. I hope you find what you need. My mom was diagnosed with ALS Sept 2009.
How old are your children? I have two, my oldest son is 22, and my youngest is 10 (he'll be 11 in Nov). I wish you lived closer, we could get together. Maybe I'll come to NY one day.
Take care and know we're all here for you.