Tokahfang
Moderator emeritus
- Joined
- Jan 31, 2010
- Messages
- 791
- Diagnosis
- 07/2009
- Country
- US
- State
- VA
- City
- Richmond
Dear Caregiver forum,
My needs are relatively light, and my husband and sister share them as schedule permits. So far that has put most of it on her, and she seems to be doing well. My progression has been pretty fast for a PLSer for the last 6 months or so. When it sped up we had an ALS scare, and that was very tough on my husband. We are over that now as my symptoms have stayed in upper motor neuron land, and things had settled down.
The consequences of my increased immobility and ongoing voice loss have hit him very hard these past few weeks, and me using my speech device to avoid critical overtiring broke him today. I was wondering if you might have ideas about how I can support him in this time. There isn't much I can make easier on care, I am still transferring myself and doing my own personal care. He is just taking it so much worse than I am, and I desperately want to help.
My needs are relatively light, and my husband and sister share them as schedule permits. So far that has put most of it on her, and she seems to be doing well. My progression has been pretty fast for a PLSer for the last 6 months or so. When it sped up we had an ALS scare, and that was very tough on my husband. We are over that now as my symptoms have stayed in upper motor neuron land, and things had settled down.
The consequences of my increased immobility and ongoing voice loss have hit him very hard these past few weeks, and me using my speech device to avoid critical overtiring broke him today. I was wondering if you might have ideas about how I can support him in this time. There isn't much I can make easier on care, I am still transferring myself and doing my own personal care. He is just taking it so much worse than I am, and I desperately want to help.