**Cinderella**
New member
- Joined
- Jun 6, 2010
- Messages
- 3
- Reason
- Loved one DX
- Country
- UK
- State
- Cleveland
- City
- Cleveland
Hi,
I have been looking through the posts on these forums for months, looking for answers but not quite sure what my questions where, but the time has come that I need to find out more.
My grandad was diagnosed with MND in November 2009. After a horrendous week or two, with him not getting out of bed, not eating etc he was finally admitted to hospital (although the doctors kept telling him all the things that were happening to him were down to old age). After 2 weeks of tests, he was diagnosed with MND.
Since the diagnosis he has had to go into a care home, as he lived alone and was struggling with everything. My grandad hasn't and won't accept that he has motor neurone disease. He shouts at anyone that refers to it as a disease. He has been through alot in the past few months, in and out of hospital and has had to cancel his appointments to the MND clinic, so he hasn't actually seen anyone for advice and support about the things that are happening to him.
It is crazy, that in 7 months since his diagnosis he is now bed ridden, he has a breathing machine throughout the night, which at first he hated, but has now become to rely on it. He speaks as though he is drunk, but in the past week, it seems as though it is taking up too much energy trying to talk, so would rather sit quiet. He has developed an awful attitude, he has given up trying to do anything for himself, complaining 'I can't do it' and he demands that everyone does everything for him. He only thinks about himself these days. Is this part of MND? he seems to have had a complete personality change. My grandad was never like this, he always wanted to laugh and make others laugh. I know it is alot for him to come to terms with, seen as though only a year ago he was living at home going about his daily tasks and now he can't even roll over in bed without getting out of breath.
The scarey thing is, is that things are only going to get worse.
Please let me know if you can relate to this story, I just want some advice and support from anyone. The time has come where we can not go through this alone any more.
Thank you
I have been looking through the posts on these forums for months, looking for answers but not quite sure what my questions where, but the time has come that I need to find out more.
My grandad was diagnosed with MND in November 2009. After a horrendous week or two, with him not getting out of bed, not eating etc he was finally admitted to hospital (although the doctors kept telling him all the things that were happening to him were down to old age). After 2 weeks of tests, he was diagnosed with MND.
Since the diagnosis he has had to go into a care home, as he lived alone and was struggling with everything. My grandad hasn't and won't accept that he has motor neurone disease. He shouts at anyone that refers to it as a disease. He has been through alot in the past few months, in and out of hospital and has had to cancel his appointments to the MND clinic, so he hasn't actually seen anyone for advice and support about the things that are happening to him.
It is crazy, that in 7 months since his diagnosis he is now bed ridden, he has a breathing machine throughout the night, which at first he hated, but has now become to rely on it. He speaks as though he is drunk, but in the past week, it seems as though it is taking up too much energy trying to talk, so would rather sit quiet. He has developed an awful attitude, he has given up trying to do anything for himself, complaining 'I can't do it' and he demands that everyone does everything for him. He only thinks about himself these days. Is this part of MND? he seems to have had a complete personality change. My grandad was never like this, he always wanted to laugh and make others laugh. I know it is alot for him to come to terms with, seen as though only a year ago he was living at home going about his daily tasks and now he can't even roll over in bed without getting out of breath.
The scarey thing is, is that things are only going to get worse.
Please let me know if you can relate to this story, I just want some advice and support from anyone. The time has come where we can not go through this alone any more.
Thank you
