Hi,
A member of my extended family has ALS with Bulbar and a recent PEG feed tube. We meet with Hospice this coming Monday. My beloved friend asked me to go on an ALS forum to ask for advice in what may have been helpful for thinning out mucus. His mobility is rapidly failing and, pretty soon he will no longer be able to get down to kneel on the floor, placing his forehead on the floor, in order to help himself expel the mucus blocks. Air volume has also decreased making this process 15-25 minutes long before anything does come up. Has anybody tried any product or medication that has successfully helped them thin out mucus in addressing how the mucus plugs can plug the airway? Please let me know if product is a liquid or a non-time release medication that could be crushed; and if you administered it into a feeding tube? I would be ever so grateful to know of anything that helps with this problem. We do cupping and maneuvers to assist (pushing in and up, just below the sternum) and have a suction machine to address saliva. Not at the point of a tracheostomy yet, and will soon need to consider bi-pap. Thanks for reading this post. - Cree
A member of my extended family has ALS with Bulbar and a recent PEG feed tube. We meet with Hospice this coming Monday. My beloved friend asked me to go on an ALS forum to ask for advice in what may have been helpful for thinning out mucus. His mobility is rapidly failing and, pretty soon he will no longer be able to get down to kneel on the floor, placing his forehead on the floor, in order to help himself expel the mucus blocks. Air volume has also decreased making this process 15-25 minutes long before anything does come up. Has anybody tried any product or medication that has successfully helped them thin out mucus in addressing how the mucus plugs can plug the airway? Please let me know if product is a liquid or a non-time release medication that could be crushed; and if you administered it into a feeding tube? I would be ever so grateful to know of anything that helps with this problem. We do cupping and maneuvers to assist (pushing in and up, just below the sternum) and have a suction machine to address saliva. Not at the point of a tracheostomy yet, and will soon need to consider bi-pap. Thanks for reading this post. - Cree