Claire
Active member
- Joined
- Feb 3, 2010
- Messages
- 31
- Reason
- CALS
- Diagnosis
- 11/2009
- Country
- US
- State
- NJ
- City
- Whitehouse Station
Help! I'm starting to panic a little . . . well a lot, actually. My husband Greg was diagnosed with ALS the day before Thanksgiving in 2009, so everything is still new to us. Hubby has lost the use of his right hand and arm, has frozen right shoulder, walks with a cane in his left hand and me holding on to his right side with one arm and onto his gait belt with my left hand, and when we go out, he's in a transport chair. Our friends and family know how much we enjoy travel, and they have been wonderful with assisting. In another week, we're going on a cruise. Two of my brothers and their wives are also going, and my brothers will be doing most of the pushing of Greg's chair and dealing with assisting him in the bathroom in public areas. Do any of you have any hints or suggestions that might help with this trip? I keep trying to envision what obstacles we might encounter, and I'm coming up blank except for a few things. We were able to get a handicapped cabin, and I've been assured that the shower will be accessible to him. The six of us will be eating together at a table for six, and my brothers and their wives know the challenges and limitations that hubby has. One thing I'll be doing is asking our waiter to bring Greg's meal first so that I could cut up the food in front of me and then just transfer it in front of him - a system that he prefers. I'll be bringing his coffee cup, his special bathing supplies, and his wedge pillow. Any other suggestions, insights, or experiences that any of you could offer would be wonderful. God Bless.