Have any of you with children gone through your child being made fun of at school because the parent has ALS? I know children can be so cruel, after all we can remember our childhood. Right?
I was dreading this day and now it has happened during such a stressful and upside down schedule for all of us. My husband would go to eat lunch (well, he wouldn't eat so as not to embarrass our son) with our son at school whenever he asked him to if he could. My husband said he thought it best to quit going, as he noticed little whispers and looks in his direction - he is not at all paranoid. And also he needed a chair instead of the little bench the children eat on and the freaking janitor argued with him about whether he could use the EMPTY folding chair! Sheesh! So he hasn't been in a while. The last time is when they had "animal" day and we went to the school with our little dog. No one could understand my husband, so I had to take over explaining what type of dog she was, etc... All the children would parade through the line looking at the animals and we would explain the animal's breed.
Well, today at lunch several boys were making fun of our son taunting him with "Your dad has ALS, he's so (insert word)!. We saw your dad at the store, he's so (insert word)!" Fortunately one of the coaches was passing by while my son was crying and asked what was wrong. He then went to recess where another child tripped him and he landed in the mud.
Now I will tell you the good side of the this: The two coaches at the school have stepped up to the plate, so to speak! The female coach does carpool and she knocked on my window telling me our son had a hard day and he would probably tell me about it. Well, of course, I'm thinking "What did he do now?" Then she said I will be praying for you! I burst out crying! Oh my! My little boy!
He was a trooper when he got in the car. I asked how his day went and he told me of the events. I then told him that I thought the school counselor ( who's sister died of ALS ) needed to know about all of this. He told me "No, please , Mom NO! I want to talk man to man with Coach SoandSo!"
God help us! And please pray for us!
I was dreading this day and now it has happened during such a stressful and upside down schedule for all of us. My husband would go to eat lunch (well, he wouldn't eat so as not to embarrass our son) with our son at school whenever he asked him to if he could. My husband said he thought it best to quit going, as he noticed little whispers and looks in his direction - he is not at all paranoid. And also he needed a chair instead of the little bench the children eat on and the freaking janitor argued with him about whether he could use the EMPTY folding chair! Sheesh! So he hasn't been in a while. The last time is when they had "animal" day and we went to the school with our little dog. No one could understand my husband, so I had to take over explaining what type of dog she was, etc... All the children would parade through the line looking at the animals and we would explain the animal's breed.
Well, today at lunch several boys were making fun of our son taunting him with "Your dad has ALS, he's so (insert word)!. We saw your dad at the store, he's so (insert word)!" Fortunately one of the coaches was passing by while my son was crying and asked what was wrong. He then went to recess where another child tripped him and he landed in the mud.
Now I will tell you the good side of the this: The two coaches at the school have stepped up to the plate, so to speak! The female coach does carpool and she knocked on my window telling me our son had a hard day and he would probably tell me about it. Well, of course, I'm thinking "What did he do now?" Then she said I will be praying for you! I burst out crying! Oh my! My little boy!
He was a trooper when he got in the car. I asked how his day went and he told me of the events. I then told him that I thought the school counselor ( who's sister died of ALS ) needed to know about all of this. He told me "No, please , Mom NO! I want to talk man to man with Coach SoandSo!"
God help us! And please pray for us!