Katie C
Very helpful member
- Joined
- Aug 1, 2009
- Messages
- 1,563
- Reason
- Lost a loved one
- Diagnosis
- 07/2009
- Country
- US
- State
- CA
- City
- San Jose
So, regarding the past few weeks. We came back from our Disney vacation (which was awesome) and Glen tried to return to work. He was back one day and came home so exhausted that as a family we decided that it was time for disability. Few days later, my mom goes to the emergency room with breathing difficulties.. fairly normal because she suffered from asthma and emphysema. X-rays show a large, inoperable mass. She opts for no chemo or radiation, a decision we support due to her other health issues. The doctors say she should have 3 - maybe 6 months. She is able to go back to her assisted living apartment, with 24 hour hospice nursing. After a few days, it becomes apparent she is deteriorating rapidly. Hospice asks that a family member be there at all times. We take turns... and sometimes my sister, niece, sister in law, and/or myself stay in groups for slumber parties. Mom passed away November 1, and her funeral was last Friday.
Today, Glen went out for his run/walk and was gone more than an hour for a route that normally takes him 45 minutes. I was about to go looking for him when he came home. When asked why it took so long, he told me he was looking for a young friend from church at the park. No.. he had no reason to believe she'd be at the park but apparently spent quite a bit of time looking for her. So for now, he's promised only to go in the morning (when his head is clearer) and to just go out and back with no stops in the park. I'm afraid the time is coming when I can't let him go ... another hit to his independence. ALS sucks. FTD sucks. ALS - FTD together is just not fair.
Gonna curl up under my blankets and not come about for about a year. Sigh.
Today, Glen went out for his run/walk and was gone more than an hour for a route that normally takes him 45 minutes. I was about to go looking for him when he came home. When asked why it took so long, he told me he was looking for a young friend from church at the park. No.. he had no reason to believe she'd be at the park but apparently spent quite a bit of time looking for her. So for now, he's promised only to go in the morning (when his head is clearer) and to just go out and back with no stops in the park. I'm afraid the time is coming when I can't let him go ... another hit to his independence. ALS sucks. FTD sucks. ALS - FTD together is just not fair.
Gonna curl up under my blankets and not come about for about a year. Sigh.