Barbie
Extremely helpful member
- Joined
- Dec 29, 2007
- Messages
- 2,681
- Reason
- Lost a loved one
- Diagnosis
- 01/2007
- Country
- US
- State
- FL
- City
- orlando
Hi I am new here and have been reading all the posts for several months but am compelled to write to you now because I am soooooo scared I have ALS. First I want to say that all of you people are my heroes and I pray for you every night and think you are so brave and I don’t want to bother you I am just soooooo scared and I really just want to hear that I don’t have ALS.
It all started last weekend--I woke up after drinking myself into a stupor on the floor of the bathroom. My stomach hurt and my head hurt and I felt shaky all over. When I got up I couldn’t walk straight and kept bumping into things. My vision was blurry and my voice was thick sounding, and my tongue felt funny. I looked in the mirror at my tongue and it looked like it is not the same on each side. I got scared and started looking at the rest of my body. OMG! Nothing is symmetrical! I measured my thighs and I discovered that the left is 2 millimeters smaller than the right. Also, when I push my finger into my butt, there is an indent for 1.3 seconds before it goes back to normal. I think I have muscle wasting! I looked up my symptoms on the computer and ALS came up! I am just sooooo scared bc once I had a twitchy muscle in my eyelid and that is a sure sign of ALS.
Called my psychiatrist and he said to relax, but I know myself better than him so I called a neurologist and they had an opening luckily that very afternoon. I explained to the doctor what was going on and what I had learned on diagnoseyourself dot com and beyourowndoctor dot net, and he told me to relax and did a very simple exam and said I was fine. But I know better than him! I am just soooooo scared that he did not take me seriously because my eyelid was not twitching when I was there.
I have called two more neurologists and made appointments but I have to wait for a week and I think I will just die if I can’t get in sooner because I am soooooooo scared that I have ALS.
I started feeling better a few days after that, but then later I was thinking about the ALS, and I got a lump in my throat. Could that be the start of bulbar symptoms? I also noticed that when I was doing my nightly pull ups, I could only do 25, and last month I was doing 27! In fact, when I went for my run yesterday I was shaking really badly when I got back. I only ran 5 miles in 100 degree heat at noon! I am soooooo scared that I have muscle weakness!
I hope that all you brave people can help me—I am thinking that I might quit my job soon since I am sure that I have ALS. Do you think I have ALS? Do you think my symptoms sound like ALS? How long do you think I have? How EXACTLY do your symptoms match mine? What should I ask my doctor? Why is the doctor pretending I do not have ALS? What should I do now? I am soooooo scared and I only want to be healthy but this disease is so terrible and I am sure that I have it.
Signed,
a worried fan
It all started last weekend--I woke up after drinking myself into a stupor on the floor of the bathroom. My stomach hurt and my head hurt and I felt shaky all over. When I got up I couldn’t walk straight and kept bumping into things. My vision was blurry and my voice was thick sounding, and my tongue felt funny. I looked in the mirror at my tongue and it looked like it is not the same on each side. I got scared and started looking at the rest of my body. OMG! Nothing is symmetrical! I measured my thighs and I discovered that the left is 2 millimeters smaller than the right. Also, when I push my finger into my butt, there is an indent for 1.3 seconds before it goes back to normal. I think I have muscle wasting! I looked up my symptoms on the computer and ALS came up! I am just sooooo scared bc once I had a twitchy muscle in my eyelid and that is a sure sign of ALS.
Called my psychiatrist and he said to relax, but I know myself better than him so I called a neurologist and they had an opening luckily that very afternoon. I explained to the doctor what was going on and what I had learned on diagnoseyourself dot com and beyourowndoctor dot net, and he told me to relax and did a very simple exam and said I was fine. But I know better than him! I am just soooooo scared that he did not take me seriously because my eyelid was not twitching when I was there.
I have called two more neurologists and made appointments but I have to wait for a week and I think I will just die if I can’t get in sooner because I am soooooooo scared that I have ALS.
I started feeling better a few days after that, but then later I was thinking about the ALS, and I got a lump in my throat. Could that be the start of bulbar symptoms? I also noticed that when I was doing my nightly pull ups, I could only do 25, and last month I was doing 27! In fact, when I went for my run yesterday I was shaking really badly when I got back. I only ran 5 miles in 100 degree heat at noon! I am soooooo scared that I have muscle weakness!
I hope that all you brave people can help me—I am thinking that I might quit my job soon since I am sure that I have ALS. Do you think I have ALS? Do you think my symptoms sound like ALS? How long do you think I have? How EXACTLY do your symptoms match mine? What should I ask my doctor? Why is the doctor pretending I do not have ALS? What should I do now? I am soooooo scared and I only want to be healthy but this disease is so terrible and I am sure that I have it.
Signed,
a worried fan
