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Old 11-06-2010, 06:21 PM   #1 (permalink)
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Default PEG tube replacement

Well we just finished changing my balloon type peg tube. It was the second time that I replaced it and the first time at home with just Beth and me doing it. It went really well and was so easy, just deflate the balloon on the old tube, pull it out, stick the new one in, fill the balloon and adjust the stopper.

They recommend doing the change every three months and it is a good thing that Beth knows how to do it because my fingers are going and in three months time someone else will probably be doing it for me.

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Old 11-06-2010, 07:38 PM   #2 (permalink)
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Default Re: PEG tube replacement

I was just wondering if peg tubes had to be changed every so often, so you answered that question for me. Do you do this right from the start and how long does it take to heal once you have it put in? Thanks for sharing this with us.
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Old 11-06-2010, 07:57 PM   #3 (permalink)
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Default Re: PEG tube replacement

Hi Phyllis and welcome to the forum. The original peg tube is usually one with a rubber mushroom on the inside and that one usually is good for up to 18 months and has to be replaced by a doctor. Once they yank (literally!) that one out they put in what I have now, the balloon type which is an easy home replacement.
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Old 11-06-2010, 09:18 PM   #4 (permalink)
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Default Re: PEG tube replacement

Barry, congratulations on your tube job. LOL, it's good you have a mature wife who can be efficient! That mushroom yank gives me the heebie jeebies to think about. I'm glad the system improves.
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Old 11-06-2010, 11:54 PM   #5 (permalink)
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Default Re: PEG tube replacement

The yank was easy for me, it did not hurt and only took a few minutes to do it and replace with the balloon type. We change my balloon type every 6 to 9 months.

Barry, do you think it really needed to be changed?
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Old 11-07-2010, 12:41 AM   #6 (permalink)
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Default Re: PEG tube replacement

Well it was getting kinda yucky but the real reason I changed it was that the tab was ripping off of the plug and I was worried that it would come off completely making it impossible to open.

I also noticed that my formula went in much faster into the new tube and as they don't cost me anything it was a good idea to change it. But you are right Joel, other than the stopper problem it could have lasted for a while.
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Old 11-07-2010, 08:30 AM   #7 (permalink)
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Default Re: PEG tube replacement

Joel, I am assuming the first yank was performed by your doctor/surgeon. Was it your GP or the original surgeon?

Barry, the tabs on my plug are gone. Wanda has no problems opening it so far. I have had it since Sept 09.
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Old 11-07-2010, 10:55 AM   #8 (permalink)
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Default Re: PEG tube replacement

Hi Glen, it was the original doctor. GP's don't know how to do it and seem to be afraid of it. Been there, done that - didn't work.

Barry, it is great to change them more often since you don't have to pay for them. I have to pay for mine so we change them less frequently.
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Old 11-07-2010, 02:11 PM   #9 (permalink)
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Default Re: PEG tube replacement

It was the original surgeon for me too, in fact even surgeons at another hospital declined to do it referring me back to the original doctor. After he did the yank and had placed the new balloon type in he sent me for abdominal and chest Xrays to be sure of a good placement.

Glen, if you have the original tube the ends are replaceable so if the cap is broken you can just pop off the old end and stick in a new one. The caps that are shaped like a plug are easy to open but the ones on the balloon type tube are shaped like a ball and just about anyone (and especially me) would need pliers to get it open if the tab was ripped off.
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Old 11-07-2010, 04:31 PM   #10 (permalink)
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Default Re: PEG tube replacement

Ummmm , OK , will have to call the surgeon and her recepionist that rides a broom.

Where did you buy your replacements?

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Old 11-07-2010, 05:22 PM   #11 (permalink)
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Default Re: PEG tube replacement

If you are talking about the ends, I got mine from the ALS Clinic for free.

I purchase my replacement tubes off of eBay. They come from the US so the broker fees are a killer. I have not been able to find them in Canada. Yet.
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Old 11-07-2010, 05:32 PM   #12 (permalink)
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Default Re: PEG tube replacement

I get all my supplies from the Alberta government home nutrition warehouse. Surely there is some US medical supply website that will sell to us Canucks?
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Old 11-07-2010, 05:38 PM   #13 (permalink)
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Default Re: PEG tube replacement

There doesn't seem to be any that are interested in selling to us Canadians. I have trouble every time I need more tubes, thankfully that is only about once every other year.
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