Last Thursday (April 23) I went to the MDA Clinic in Oklahoma City. My neurologist told me, "I am not completely sure that you have Myasthenia Gravis, I now know that you do not have ALS."

I am forever changed. I will not be the same. I have learned so much in the last year and a half. My friend asked me Saturday, "What is the one thing that you can take away from this situation?" and I told her that I am no longer afraid. For some of you who have never been...

I found out yesterday afternoon that they are having to move up my appointment at the MDA Clinic because the doctor will be out of town next week. So I am going tomorrow (Thursday the 23rd) to OKC and will know something earlier than I thought.

My appointment with the neurologist at the MDA Clinic in OKC is finally around the corner. It is Thursday, April 30. I would love it if he is able to give me a definitive diagnosis of MG and totally throw out the ALS one.

I had what may be the most dramatic flare-up if this DOES end up being MG. A week ago Friday, after a very stressful week, we had Good Friday off and I took my daughter to take her driver's test. After lunch I was tired and decided to take a nap, which I very...

Yesterday I went back to see Dr. Beson at the MDA Neuromuscular Center in Oklahoma City. I told him that my speech was almost normal, and I only occasionally have a day where it is worse. Also my energy is better than it has been in over a year. He said he loves it when doctors are wrong about an ALS diagnosis. All the tests showed either the same level or improvement of strength, etc. So he said that he believes that I will live a long, normal life. He wants to see me in six months, when...

I went to the MDA/ALS Clinic in Oklahoma City on June 26 for the first time. I was diagnosed in Houston and went to the clinic there in May for my first three month check-up. But the trip is at least eight hours and an overnight stay, so I have chosen to go to Oklahoma City, less than two hours away. Dr. Beson was trained by Dr. Appel in Houston and I was impressed by his warmth and knowledge. He doesn't see any progression since my diagnosis. He was very encouraging about the long-range outlook....