Hello Everyone Im 24 And Very Scared Ive Talked To A Few Wonderful Members On Here Especially Grandpa Al. I Recently Had A Baby In Feb Her Name Was Lilyrose She Died Peacefully In My Arms March 7th 12 Days Old Do To A Genatic Disorder Called Trisomy 18. Since Then Ive Had Widespread Twitching Everywear 24/7 3 Emgs Clean Mri Spinal Tap Im So Scared And Dont Believe The Docs Because I Came On Here And See That Everyone Took Years To Diagnose Why Do I Constanly Have Them Face Calves Thighs Eyes Lips Abdomen Feet. Iam Recently Pregnant Again And Keep Thinking About My Funeral And The New Baby Being There With My Husband Please Help Im Living Every Day As If Iam Dying Im Going To Als Clinic Nuero Told Me Waste Of Time, Also When Ii Was Pregnant I Got This Weared Vision Problem Eye Floaters That Go On My Tv Screen And Pulsating Movements That Never Went Away I Have Hypothyroidism And Im So Scared You Guys Please Help My Family Says Im Insane I Had At Least 30 Twitches In Local Places While Typing This Thanks Jenny
Iam sorry but can someone take me seriously
Posted 09-30-2007 at 04:54 PM by scared of als
Total Comments 4
Comments
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Jenny, ALS cannot be self diagnosed
I'm more worried that you have a severe anxiety disorder than ALS. Stress can do more damage to a person's body that many realize. Due to your young age and recent events, as well as your symptoms, your Dr. is probably correct to say that you do not fit the symptoms of having ALS. There are other things it can be and with testing, it will likely be found and treatable.
You need to discuss your anxiety with a professional and cope with the panic you seem to be experiencing. Remember that you're pregnant and allowing yourself to freak out like this MAY cause serious harm to the fetus.
I've seen that you're posting like crazy all over the ALS site and this is odd behavior. Nobody is saying that you should go away but you should keep your posts asking for help limited to your own blogs. When you go to someone else's blog, you should treat them with respect. Nobody here is discrediting your fear but as a support group for those that have ALS and the caregivers of those that have it, you do not currently fit.Posted 10-01-2007 at 05:19 PM by califsand
- Sweetie, you need to take yourself seriously. Deal with the loss of your baby and address your twitches with listening to your doctor. Remember life is all what you make of it. Find things to be thankful for.... family, friends, a safe place to lie your head, etc. Listen to the advice you get. You are young and have so much blessing ahead of you. Take care, and fight away the things that you don't need.... like fear of the unknown. MPosted 12-13-2007 at 03:32 AM by Marjorie R. Wilcox
- Wow this its been a long time since i looked at my blog. Now i have ALS like i knew it.Posted 03-15-2009 at 01:26 AM by scared of als
- Jenny, I'm so very sorry to hear about the loss of your baby and your ALS diagnosis. I have worked with 4 women who have either been diagnosed with ALS (one being my sister-in-law), or died from it. With all of these women it took years for them to be correctly diagnosed so I can understand your frustration and worry. One of the women had gone to the emergency room so many times due to pain that they wanted to admit her to a psycho-ward because they thought she was making all of her symptoms up to get pain medications. She felt like nobody took her seriously. Which in part, was true. My sister-in-law had the same problem. She called and visited her neurologist so many times he actually told her to go to the emergency room if she wasn't getting satisfaction from him...he NEVER did tell her what her diagnosis was. She had to go to the University of Utah to find out. The bad thing is, sadly, there's no cure. May God bless you and all those who love and care about you. You're in my prayers.Posted 10-12-2009 at 06:31 PM by Vickaleesky
