Went out today for a little fresh air... My 3 yr old hopped on, and off we went. As soon as we got onto the road it started to drizzle. No problem because we had an umbrella. Suddenly, the drizzle turned into a heavy down pour. But we were ok since our umbrella was giving us good shelter. Well...until the gusty winds -ha! So, there we were, my daughter and I, zooming as fast as we could and laughing so hard as we were trying to hold onto a very-broken-flipped-up-inside-out umbrella. Then to my surprise,...

Well, I have started down a bad trail of not keeping up with my blog here. Since I stopped working I have been more busy than ever.

I head the the VA hospital Tuesday and have the PEG inserted Wednesday. Then they keep me overnight so they can check it out the next day. I have read on here that it can almost be n office procedure, so maybe they are more cautious, I don't know.

To say I'm a little frightened would be an understatement. Like I posted on here, maybe it's...

Let us talk about marriage. I have been married to my husband for a long time--we have been together since 1982. I can hardly believe it especially since I am only a young woman still. LOL.

But seriously, the change in my marriage since ALS came along is one of the saddest things to me. Before ALS, I would say we were extremely happy--very much in love and no serious problems. we had a division of labor that worked very well for us, similar goals and dreams and plans. We...

My Very First Entry:
My husband has ALS diagnosed two years ago this June 2013, but the doctor feels he had it a year before that.
June 2011: Walking with a cane, sometimes falling...off and on before the diagnosis he felt suddenly ill just that all over feeling of yuck. And, all during our relationship 2001-til his diagnosis he had spells where he was chilled. It was frightening... teeth chattering cold. Any relationship to the ALS?
He is a Vet...Vietnam!...

I have always been known for my independent streak and for living life to the fullest, without regret. I played lots of sports and always loved pushing my physical limits.

Now, things are a little different. As my body weakens and changes, sometimes I catch myself taking refuge and*living more inside my head. It is weird because I was such a physical person always living in the moment.

However, I*am still me and so far, I seem to be adapting to my new reality. Instead...