Yesterday evening the ALSA San Diego Chapter held it kick off event for the Walk to Defeat ALS. Marsi the event coordinator asked if I would give a short speech about courage during the event. I thought I would share the speech with you, my fellow forum friends.

Courage:

Marsi asked if I would say a few words about courage. If she only knew that when it comes to speaking to groups I’m like the cowardly lion in the Wizard of OZ.

That’s the thing about...

Marty is gone. Nothing can change that. I love him and miss him more than words can describe. I try to believe that his being gone from me is not any worse than watching the ALS take him piece by piece. These things are almost equal in their pain for me.
The memorial service on Friday July 9th. Over 120 singers volunteered to sing him Home. Marty selected the music, we selected the scripture together and people are still talking about the service. That doesn't help me though. I am still...

With ventilation equipment it is essential to have some form of backup power. We thought we had it under control as my vent lasts over 8 hours on its internal battery and we have 2. The vent also runs off my power wheelchair batteries. Then we have a battery powered suction machine and the lift is battery powered. We could last for over 24 hours, easily, if the power went out.

Well, the power did go out one evening and was out for 12 hours. What we failed to remember was our bed...

I believe absolutely that God heals. But I don’t believe that he must, that he should, or that he necessarily will.

This is a tough question for Christians to deal with; and one that confronts me again and again. I’m hesitant to write about this. I worry that my discussion might be lopsided, or that there might be a gaping hole in my thinking. But my greatest concern is that what I believe (and writing seems to cement belief) might determine the possibility of recovery. There...

After loosing my brother Tim form ALS in Feb. I am still grieving over him and remembering the horrible suffering he went through. I also at the same time I have had personal private family matters to deal with. After Tim passed I was divorced after 23 years of marriage. It is still very hard for me to deal with what I experienced with Tim and this disease. I am coming back to the Forum slowly and doing my Advocating for ALS. If anyone needs to talk or have any questions that I can help them with....