http://www.alsforums.com/forum/blogs/ms-pie/ ALSforums is a support group community that provides answers, tips, friendship, care and support to people affected by ALS, MND and PLS. en Wed, 19 Jun 2013 20:44:51 GMT vBulletin 60 http://www.alsforums.com/forum/images/misc/rss.jpg http://www.alsforums.com/forum/blogs/ms-pie/ http://www.alsforums.com/forum/blogs/ms-pie/434-people-people-people.html Sat, 20 Aug 2011 22:51:40 GMT I've got to say that I didn't really think too much about ALS before I started having leg weakness last summer. I knew about it and knew it was a monster of a "condition" and the last thing in the world I wished for, but didn't really think about it much since I never knew anyone with it.

I understand when people give me that slack jawed "Wha?" look. Or say something apparently ignorant like "oh, is it like Alzheimer's?" ALS just isn't a well known disease and that's a fact. That's why when something like this happens we need to see it as an opportunity to educate people.

It stings when someone minimizes it by whipping out their cell phones after you've told them of your condition or trivializes it by saying "Oh, ok, well see you later." as they run out the door after you respond to their inquiry about your awkward gate. But, they really are ignorant in the true sense of the word. It's a bit too real for the common folk. And they're too busy to take the time to care. I do understand all that.

That said, I have seen the compasion of old friends and total strangers and it warms my heart. God's blessings and protection on them, the ignorant and uninterested, and for all of us. ]]> Ms. Pie http://www.alsforums.com/forum/blogs/ms-pie/434-people-people-people.html http://www.alsforums.com/forum/blogs/ms-pie/401-toughest-part-so-far.html Tue, 14 Jun 2011 19:15:54 GMT I feel like I can handle anything that comes along. The hardest part is what this news does to people that I care about. It breaks my heart to see... I feel like I can handle anything that comes along. The hardest part is what this news does to people that I care about. It breaks my heart to see them cry and their hurt.

Do I lie and say it's back trouble to concerned aquaintences? I just don't know what to say when they press for an explanation. I've tried the "It's a Motor Neuron Disorder" and that works sometimes. I just don't know.

Sometimes I just want to lock myself in the house and not talk to anyone but family. I can do this gig. It's everyone else that I worry about. ]]> Ms. Pie http://www.alsforums.com/forum/blogs/ms-pie/401-toughest-part-so-far.html