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The toughest part so far...

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Posted 06-14-2011 at 02:15 PM by Ms. Pie

I feel like I can handle anything that comes along. The hardest part is what this news does to people that I care about. It breaks my heart to see them cry and their hurt.

Do I lie and say it's back trouble to concerned aquaintences? I just don't know what to say when they press for an explanation. I've tried the "It's a Motor Neuron Disorder" and that works sometimes. I just don't know.

Sometimes I just want to lock myself in the house and not talk to anyone but family. I can do this gig. It's everyone else that I worry about.
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Comments

  1. Old Comment
    notme's Avatar
    HI Marta

    I'm sorry you're struggling with what to tell people. You have the right to your privacy--and can tell only those you want to share the information with.

    If you want to be able to tell them--look at it perhaps as an opportunity to make them more aware of a disease that has all too little awareness.

    Hugs hon
    permalink
    Posted 06-15-2011 at 12:45 PM by notme notme is offline
  2. Old Comment
    Ms. Pie's Avatar
    Thanks Patty.
    permalink
    Posted 06-17-2011 at 08:17 PM by Ms. Pie Ms. Pie is offline
  3. Old Comment
    I Love you Marta Bug! You are so special, I won't cry, but not only does this disease hurt the person with the Als, but it hurts us all because there is nothing we can do to change it's course.
    You and all my friends on this forum..I hurt for you all! I come to care for people on this forum and losing someone hurts.. Just know you do what you feel comfortable doing.
    permalink
    Posted 06-22-2011 at 09:40 PM by joni51 joni51 is offline
  4. Old Comment
    Ms. Pie's Avatar
    I think I'm getting the hang of it Joni. I blame old age or "messing myself up" or whatever they are comfortable with. Sometimes I tell the truth but only with certain people. This really does bite.
    permalink
    Posted 06-30-2011 at 06:11 PM by Ms. Pie Ms. Pie is offline
  5. Old Comment
    smwelder's Avatar
    yes it does bite. i like your blog
    permalink
    Posted 07-05-2011 at 10:42 PM by smwelder smwelder is offline
  6. Old Comment
    marta just tell them the truth. we live with an 800 lb gorilla in our lives. lay some of that weight on them. it never hurts to go with the truth.

    be strong.
    permalink
    Posted 07-08-2011 at 03:10 PM by jackberry jackberry is offline
  7. Old Comment
    Ms. Pie's Avatar
    Thanks Shon and Jack. I feel I have to be careful with whom I share the truth. Some are easy and sympathetic without being emotional. With some the hurt is so evident in their eyes I just fall apart. Well, it is what it is I suppose. It seems I have a lot of people that care, which is heartwarming and comforting. I think you all are the best.
    Love,
    Marta
    permalink
    Posted 07-10-2011 at 12:45 PM by Ms. Pie Ms. Pie is offline
  8. Old Comment
    Sequoia's Avatar

    honest words

    Marta, just discovered your comment on my blog and now behold, I see your blog...do what ever is the real You...the you that knows what you need, the you that is in the depths of the core of your being. Sometimes it takes a while to discover this You...I love it that you are sharing parts of this You with all of us!
    permalink
    Posted 08-01-2011 at 10:26 AM by Sequoia Sequoia is offline
 

    
   
   
   
   
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