Mike27's Vtamin Regimen
Posted 12-07-2007 at 06:37 PM by Mike27
(Sung to the tune of 'Spam' by Monty Python)
A few folks have asked what I take for vitamins as recommended by my neuro.
(One of them...)
So here's a re-print from my other blog:
I was diagnosed in 1993. It was recommended to me to take MASSIVE amounts of anti-oxidant vitamins. The neurologist that suggested this approach said that this was the best approach as there was a “school of thought” that ALS was caused by the motor neurons being destroyed by free radicals.
Free Radical Damage to Motor NeuronsReactive oxygen species (ROS), or free radicals, are generated as a result of metabolic processes. These free radicals have at least one unpaired electron, which renders them chemically unstable and highly reactive with other molecules in the body. Mitochondrial DNA (mtDNA) is located near the inner mitochondrial membrane, and lacks advanced DNA repair mechanisms, making mtDNA particularly susceptible to damage from ROS. Cells respond to oxidative damage by neutralizing free radicals through antioxidant enzymes, such as superoxide dismutase (SOD) and catalase. Eventually, damage accumulates due to the inability of cells to repair damage as quickly as it arises.
Article Link:
http://www.als.ca/if_you_have_als/al...diagnosis.aspx
Now, the vitamins I was told to take were:
Vitamin C-3000 mg;
vitamin E-1600 IU; and
beta carotene-50,000 IU.
These are daily doses spread all through the day, not all at once!
As I read and researched, my regimen took on a few more vitamins. There are many anti-oxidants on the market, so you must do your homework.
I’ve since added:
1 daily low dose aspirin;
triple fish oil-3000 mg;
flax oil-3000 mg;
vitamin B complex;
Co enzyme Q10-300 mg; and
vitamin B12-3000 mcg (sublingual).
I know this seems like a lot of pills to take every day, but you get used to it!
Remember before you try any therapy that’s off the beaten path, remember this advice:
NHP (Natural Health Product) Checklist:
To make decisions about using an NHP, use these questions as guides for you
and your doctor:
• What is the health claim being made as a result of product use?
• What is the cost?
• Could the product be harmful in any way?
• Will it interfere with anything else I need to take to manage my ALS symptoms?
• Does the product label bear a DIN, NPN, or DINHM?
• Does my ALS doctor know of any other patients who have taken it?
It’s important to be self reliant when it comes to our health and ALS. You must become an expert in your disease.
Like the realtor’s code says: location, location, location!
We must do the same: research, research, research!
Good luck!
Total Comments 2
Comments
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That's quite a lot of supplements on a daliy basis! Do you know if they make all these supplements in liquid form? I would prefer to take liquids than pills. Also, what is the approximate cost (monthly), for your regimen? Thanks.Posted 12-31-2007 at 02:01 PM by vmd
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Many Pills
My husband, HD, developed what we thought was a dropped foot in late 2002. His GP immediately took him off the cholesterol medication he was on (these cause muscle weakness, now we read all the print for meds no matter how small) After coming out of the deep hole that the advise to "put your affairs in order) pushes you into we started researching. We found that here is a fair body of anecdotal evidence that toxins are related to neuro conditions. My husband took some special urine tests and found that both mercury and zinc were very elevated (67 instead of 3 and 35 instead of 9). We have through diet and large amount of naturopathic pills and therapies have knocked them down to 3.9 and12. His calf muscles have gone and actually last fall he had a major move in muscle loss in his legs after a general anesthetic for gall bladder surgery. Bad move but we didn't know that until HD was on the table and the anesthesis said "i don't like giving a general to ALS patients it's not good for them". Anyway we have found with this thing you can't look back you learn and avoid. Mike you are lucky to have a neuro who was open to other than the normal stance. We really believe that with luck we can keep HD reasonably able for a long time. He is still mobile though slow and labourious but we;ll take that. As they say as long as you are looking at the grass from the green side everything is good. SLSPosted 01-02-2008 at 06:13 PM by batans
