Everyone should lobby their local ALS Clinics to purchase a supply of this Manual for distribution to their patients.

To everyone on this forum:

The Ontario ALS Society, (not the Canadian ALS Society, they are two different organizations) on their site has an excellent resource manual for persons with ALS and their families and caregivers.

It costs $20.00 plus shipping Canadian funds unless you get your ALS Clinic to confirm you have ALS and you may get it free. For those of you who think you have ALS and probably don't you should check this manual.

It's all online...

I was reading some information about mercury poisoning due to amalgams leaking into the bloodstream. That patients with ALS have a higher level of mercury then do others. Has anyone ever had their mercury levels assessed? And is there any information about detoxification of mercury and is it of any use once a diagnoses is made? I've had a mouth full of fillings since childhood? Makes some sense to me. What other information is there out there? And does the medical ALS community consider mercury...

This is a post for all working care givers in Canada.
Since 2004, under the unemployment benefits Canada has offered a Compassionate Leave benefits for care givers of a family member. I
believe one qualifies for up to 4 months at a time.
Can split the time and when hours are accumulated again can qualify for more time off. While on this leave it works much the same as paternity leave- private arrangements with your employer can be made to cove meds etc or you would qualify...