You never realize how one phrase can change a life. On November 16, 2010 Daryl and I heard my doctor use the phrase, “You have ALS” and we began to realize just how much impact one phrase can have on a life. We also found out how much we could learn.
For example, we learned how to look at our house in new way, a way in which a wheelchair could move around in it easily. We learned how important clinical trials are to those who need a cure. We learned how to work the scooters at Wal-Mart....

Dry Mouth and Throat

Imagine an mega ultra dry mouth
And let’s also throw your throat in too
Now imagine your head hitting the pillow
Off to sleep then this happens to you

You’re okay when standing sitting up
Then your saliva is in seeming excess
So much that you slaver frequently
And end up looking quite a fine mess

So let’s go back to that awful dryness
Within you every literal passing night
Sometimes...