ALSFORUMS.COM   - ALS/MND Support Group   - Fibromyalgia Support Group   - PLS Support Group   - PBP Support Group   - PMA Support Group   -  

Go Back   ALS/MND Support Group Forums > Blogs


Old

Are you pissed at God

Posted 06-29-2012 at 07:44 AM by hn7609

I have been asked this question 3 times now by complete strangers. Since my diagnosis 9 months ago I have progressed into a wheel chair full time so I guess that I’m looking a bit desperate now days. My standard answer is “NO” I’m not pissed, I don’t think that he did this to me anyway, but if he did then he’s a mean SOB. Usually they will then quote a few verses & ask if they can pray for me. I always say sure “you can pray for me.” Normally that’s the end of it but yesterday this one...
New Member (Say Hi)
Posted in Uncategorized
Views 1559 Comments 0 hn7609 is offline
Old

i can still

Posted 06-25-2012 at 02:06 PM by CuriousGirl

light a match,make my bed, give dogs medication, put on my shoes, wear heels, go on dates (tho i'm self conscious when date watches as i struggle with ... with ... well, anything people need their hands for),
New Member (Say Hi)
Posted in Uncategorized
Views 1341 Comments 0 CuriousGirl is offline
Old

views but no comments

Posted 06-22-2012 at 12:06 AM by CuriousGirl
Updated 06-25-2012 at 01:48 PM by CuriousGirl (3'd para from "well" to "thats ok" sounds better.)

that seems sort of strange...but then i'm new to blogging. maybe people don't respond in any way.

there have been 110 views to my blog, but no comments. i was trying to change my fear and negativity into gratitude by listing the things i still can do.

thats ok...if this blog is just for me, then i'll keep posting since it may be the only documentation of my personal experience with this disease.

i'm not really a lurker here. i've posted to some threads,...
New Member (Say Hi)
Posted in Uncategorized
Views 405 Comments 1 CuriousGirl is offline
Old

Terminal illness makes you think (Poem)

Posted 06-13-2012 at 01:36 PM by Poet Chistopher Robin

Terminal illness makes you think

Terminal illness makes you think
You have thickener in all you drink
If you did not you would choke
This is serious and this is no joke

They say thickening drink is better
It makes you fear anything wetter
It catches your breath each time
You cough bitter as if drinking lime

It can leave you quite often crying
Makes your family ever be sighing
Leaves daily thoughts...
Poet Chistopher Robin's Avatar
Member
Posted in Uncategorized
Views 518 Comments 0 Poet Chistopher Robin is offline
Old

first ever blog ever...

Posted 06-11-2012 at 09:58 PM by CuriousGirl

blogging sounded like a good ides but now i dont know where to begin...

began making notes in my moment diary noting when i notice things are becoming difficult to do.

but, now i've begun noting, and appreciating what i still CAN do:

curl my hair, put on my make up, do the dishes, shave my legs and under arms, put on my insulin pump, test my sugars, clean the house, give a massage, do yoga, bathe dogs, cook, talk, eat, drive, type (with right hand),...
New Member (Say Hi)
Posted in Uncategorized
Views 365 Comments 1 CuriousGirl is offline

    
   
   
   
   
  ALSforums - Get help and support with ALS/MND