boblandstar1
11-05-2009, 10:24 AM
> I am a PALS still hanging in 5 years after diagnoses. I need 24 hour care and I employ 4 privately paid caregivers. I like to maintain a casual and fun environment in my household. My caregivers have jokingly named the region between my waist and thighs as the "Stimulus Package". I thought i'd share my reality.
Unfortunately the "stimulus package" is an involuntary muscle and still works just fine. Involuntary is an understatement as it regularly and shamelessly proves it is capable of independent thought. Its propensity to "look around" goes beyond simple curiosity and borders on "evil genius" designed to cause maximum embarrassment. Comments such as "stand back, it might go off" and " don't point that unless you intend to use it mister" are common. Comments including such descriptive words as "little", "Cute" and "tiny" are discouraged. Words like "massive" "awesome" and "WOW" are condusive to "job security". It does however prove functional at bath time. Caregivers describe it as a "dandy" place to hang things like the soap on a rope and bath towels. Due to fears of liability from on the job injurys I had to include "heavy lifting" as a job requirement.
Unfortunately the "stimulus package" is an involuntary muscle and still works just fine. Involuntary is an understatement as it regularly and shamelessly proves it is capable of independent thought. Its propensity to "look around" goes beyond simple curiosity and borders on "evil genius" designed to cause maximum embarrassment. Comments such as "stand back, it might go off" and " don't point that unless you intend to use it mister" are common. Comments including such descriptive words as "little", "Cute" and "tiny" are discouraged. Words like "massive" "awesome" and "WOW" are condusive to "job security". It does however prove functional at bath time. Caregivers describe it as a "dandy" place to hang things like the soap on a rope and bath towels. Due to fears of liability from on the job injurys I had to include "heavy lifting" as a job requirement.
