Need help. Fearing the worst

[Trevor]

Hi,

Last night I woke up at 12:30 with head pain/pressure and my left shoulder which has been hurting for months now and hurts even more. My arms are weak as with my legs. I have colitis and is active started prednisone last week. im loosing weight very quick even being on the prednisone.My coloits is not bad just a little bleeding. My arms and hands are so week and my joints are popping and I feel pressure in my spine, both lower and upper. Im going to my family doctor at 11:30, but I felt like calling an ambulance last night. I posted before worried about als and now i believe i have it. My wife is crying and I doing the best to hide from my son. I know you cant dx me but Im scared and dont what to do.

[SandraD]

Hi Trevor,

I am sorry you are having these horrible symptoms. It must be very scary. But it sounds like you are also experiencing some intense anxiety, which can make everything worse. I don't think head pain/pressure or pressure in the lower and upper back sounds like a symptom of ALS, although hand weakness is a symptom, but also could be caused by many other things. have you had an EMG done? what has that shown? Have you seen a neurologist?

It sounds like a good idea to see your primary care doctor this morning. I would talk to him/her about your ALS fears. if they seem unfounded, perhaps the dr. can prescribe some anti-anxiety meds for you. is there any possibility that some of your symptoms could be caused by prednisone?

take care--

Sandra

[wright]

Hello Trevor

I just read over some of your posts and in my opinion, your symptoms simply do not point towards ALS.

Certainly something is happening to you that needs to be addressed but right now, I wouldn't be worrying about any specific condition. Your set of symptoms are fairly vague in nature and it appears what you have has escaped detection by your physicians. Sometimes (and unfortunately) this is what happens. What needs to be done in those situations is to practice patience and do your best to be optimistic for a good outcome. Do your best to calm your family and to calm yourself. It appears as if you are most worried about ALS . . . and again . . . what you have shared does not point towards it. Take care.

[Trevor]

Thank you for your reponses. I have had emgs done with normal results. It is just hard to calm down but the doc up my aniexty meds and hopefully that will help.