View Full Version : Jennifer51
Danijela
10-29-2009, 03:06 PM
Dear Friends,
I have been informed by Jennie's (Jennifer51) family that Jennie passed away peacefully yesterday, around 6pm, with her family at her bedside. Her breathing was poor for a while, and she declined rapidly over the past week or so. There is a message on Jennie's page, posted by her a few days ago, which says it all.
I am very sad about Jennie's passing, she was such a fighter and so enthusiastic about research. I had a pleasure of meeting her and her family here in the UK, at one of MNDA conferences, a few months ago. Her speech was gone, but she communicated via her laptop with a great sense of humour. She also helped me a lot with the UK disability benefits maze, when my partner was diagnosed last year.
Danijela
Oh, Dani, this is such sad news. Please pass along our condolences to her family.
BarryG
10-29-2009, 03:26 PM
Oh, now I am sad again :-(:-(
Danijela, thank you very much for letting us know about Jennifer. She was one of the first bulbar onset PALS that I met on this forum, one of my first friends here and I learned a lot from her when I knew nothing. She was the one who suggested the speech system that I use every day now and her passing makes me very sad. I was just thinking about her yesterday because we hadn't heard from her in a while. At least she isn't in pain anymore
My condolences to her family and friends, I can't write anymore, too sad
Barry
GlenBrittle
10-29-2009, 06:29 PM
no No NO !
Godspeed Jennifer !
Glen
Erica
10-29-2009, 06:32 PM
This so sad.... Jennifer was my first friend on this forum. My condolences to her family.Erica
thelma313
10-29-2009, 07:50 PM
I am very very saddened by this news! Jennifer was so helpful and so generous with her knowledge. She was a wonderful woman! Like Barry, I was just thinking how we hadn't heard from her in a little while. Please share my condolences with her family, Dani and thank you for letting us know.
I am glad she isn't suffering anymore but Jennifer will be seriously missed.
hopingforcure
10-29-2009, 08:58 PM
Oh boy that is sad. I really am sorry to hear that she was such a nice person. I hate when we lose a member. Thank you for sharing, her memory will stay alive through her helpful posts and her many friends on this forum. So glad you got to meet her,
KeeKer
10-29-2009, 10:18 PM
Thanks for letting us know. Please give my sympathies to her family! I also was wondering where she was.
Thanks for letting us know. Jennie was a friend to many of us here, I hate that she's passed.
Zaphoon
10-29-2009, 11:27 PM
It's a bit of a shock to hear Jenni is gone. She was a very helpful voice on this forum. My condolences to her family.
tdamess
10-29-2009, 11:42 PM
i am so sorry to hear this family will be in my thoughts
sisgldnhr
10-30-2009, 06:54 AM
I'm so sorry to hear of Jenny's passing. God bless her family, they will be in my prayers. Heaven has another angel.
Sis
i am so sorry to hear this news,it is just so sad.
please give my condolences to her family
sharona
10-30-2009, 12:13 PM
So Sorry to hear this news .God Bless her family during this horrible loss.
Sharon
brooksea
10-30-2009, 01:18 PM
Very sad news! Please let her family know they are in our prayers.
DgtofTNfan
10-30-2009, 04:16 PM
This just breaks my heart. When I first started going through threads to help my Dad after he was diagnosed, the forum was just full of great info from Jennifer. She was a fighter and she will be missed.
My condolences to her family and friends.
Dana
Thanks for letting us know Dani. My condolences to her family and friends.
AL.
Big Mike
10-30-2009, 10:12 PM
I am very sad to hear of her passing. I always enjoyed reading her posts. Dani, please give her family my deepest condolensces.
lydia
10-31-2009, 05:13 PM
This is so sad. My prayers are with her family.
Lydia
Blackpool
11-01-2009, 12:23 PM
So sorry for her family, and the loss of a pals .Peace be with them all.
handinhand
11-01-2009, 01:34 PM
I am so sad. Jenn was one of the first friends I made on the forum. She was very up front with her ideas and she shared alot with me. I will dearly miss her emails. I did send an email a while ago and wondered why she didn't email me back?? I thought she wa maybe traveling again... This is my first forum friend lost. It is truly a sad day for many of us. My prayers are with her family.... God Bless, Linda
BarryG
11-01-2009, 01:46 PM
Linda, Jennifer was my first forum friend lost too, and it is so sad. But you know what? I believe that she IS travelling, in a land without ALS or any other worries or ailments. I'm not a spiritual person in a religious, go to church on Sunday kind of person but I do believe in the spirit in all of us and I know that she is in a better place.
Barry
handinhand
11-01-2009, 03:48 PM
I know what you are saying Berry. Jen and I talked a lot about not wanting to be here if we couldn't take care of ourselves. I know she is in a better place... I just think it will be hard to make friends and then watch then dwindle away one by one...What an emotional ride we are all on... Life isn't fair.... :-(
Danijela
11-02-2009, 04:52 AM
Hi everyone. I will pass your thoughts and messages to the family. Jennie's death shook me up and I did not sleep that night. I was also reluctant to make any online friends after my partner's diagnosis, knowing that the decline in MND can be rapid, and fearing getting close to someone only to lose them. But then, life is bigger and than all that, we never what is around the corner, so I could not even believe I was prepared to 'discriminate' amongst people (whom I become close to) just because they have MND.
Surely, it is also about shared set of values, interests, thoughts, dreams - life philosophy, and not just about this stupid disease.
Dani
handinhand
11-02-2009, 12:56 PM
You're right Trying to keep it all in perspective... Very Sad today .. Can't stop thinking about how one day you're here and the next day gone.... I'm sure she is watching us and saying ,{ be happy for me. No more sadness or pain} She will be missed... L:cry:
I remember saying to Jennie once how positive she always seemed, and how did she manage it. This is what she wrote to me in response:
Thank you for leaving a lovely message for me. I hate it that we have needed to get to know each other. I think I come over as being more positive than I really am. My husband does not think so, as I often have tears at bed time. I do have a very close and supportive family, married 38 years and hubby is doing really well at learning all he has to now.
However, I cannot giveup without a fight and have to try to find a solution to this, maybe I have my head in the clouds, but if it gives me hope, then I will fight on. I am SO glad of the forum, we do surely need each other for support, guidance and hope. Many people give little things which in total makes things better for everyone. Thank goodness for everyone who helps. Thank you again. jennie
We have many upbeat PALS on this forum, plus, it seems the CALS will write how their PALS never complains, and I personally complain a lot. I'm not a whiner, but a protester I guess. So, in a way I'm glad Jennie told me that, but yet it made me sadder to know it. To think about a friend being vulnerable to what she had no power to control.
She is missed.
rocmg
11-13-2009, 10:38 PM
i'm so sad that jennifer has gone. she really did try so hard to be positive but sometimes her sadness and disappointment just seeped through in the way she talked about having MND.
it's too much. this disease is so rotten. she was holding out for a treatment or a light at the end of the tunnel and nothing came. nothing. that's what makes it so sad.
rest in peace, jennifer. you fought a brave fight.
BethU
11-13-2009, 11:15 PM
This is a real shock. I had no idea she was declining so fast. I, too, was wondering why we hadn't heard from her.
She was a real friend to everyone on this forum, and will be missed. My prayers are with her family.
Peace, Jenni ...
