Gotten the H1N1 vaccine yet??? [Archive]

brooksea

10-20-2009, 10:15 AM

I have called around to every local pharmacy and clinic (listed on the DCD site) within 50 miles of us to see if they have the H1N1 injectable vaccine. Two had the nasal mist vaccine and were only giving it to very young children, none had the injectable. (I understand the mist should not be taken by pALS, since it is a live virus.) My husband's GP will not be getting the vaccine at all.

Have any of you actually gotten an H1N1 shot yet? If so, was it available at a clinic/pharmacy or a doc's office?

GlenBrittle

10-20-2009, 11:23 AM

I am told that is not available yet here , and the health unit will be giving out the shots, not the doctors.

My Dr says I should get it as soon as its available and then wait 3 - 4 weeks for the regular flu shot which is only available if you are 65 and older right now.

Glen

lisaann1170

10-20-2009, 12:34 PM

The shot hasn't been available around me, yet. All the "hype" (for lack of a better word) surrounding the flu this year is a stark balance against the lack of available vaccinations!

brooksea

10-20-2009, 12:54 PM

(listed on the DCD site) I meant "CDC" site!

For the U.S., here is the CDC link for locations that supposedly will have the vaccine:

CDC 2009 H1N1 Flu | State/Jurisdiction Contact Information for Providers Interested in Providing H1N1 Vaccine (http://www.cdc.gov/h1n1flu/vaccination/statecontacts.htm)

Just click on your state and enter your zip code for docs/clinics/pharmacies near you that should be carrying the vaccine whenever its made available.

My husband got the regular flu shot today.

tajmom

10-20-2009, 02:24 PM

I was at the ALS clinic at Johns Hopkins last week for a visit related to the Talampanel trial. They gave me a seasonal flu shot but said they have only a limited amount of H1N1 vaccine available and they have to start with the healthcare providers. Maybe next month when I go for clinic.

Markbreton

10-20-2009, 02:59 PM

Our GP e-mailed me to say that as soon as she receives the vaccine she will come out to the house and give Tammy the injection. Should be within the next few weeks. Tammy is at the top of the list for the shot.

peter57

10-20-2009, 05:44 PM

Hi guys,
Down under we are able to get the H1N1 vaccine now (have for a few weeks)

Currently health workers, elderly, people with medical conditions eg MND etc and others i have forgotten are encoraged to get the shot first.
We have had 2 clinics in my town already.

I think the vaccine being used is a Aus. developed one (dont quote me) so it might explain why we have it and it is comming soon to you.

On the other hand if you develop a cure or slowing down treatment for MND then i expect it to be here the day it is available to you .:grin:

cheers
Peter

handinhand

10-21-2009, 12:04 AM

I was at clinic on Thursday. I was given the seasonal flu shot. MDA pd for it. I was told to get a voucher from my Dr in Denver as soon as the H1N1 is out. Told it should be coming soon. Also I believe MDA is paying that bill also... Might want to ck this out? Oh, and some Walgreens are working with MDA and will give the shot at some of their stores.. Lin

Danijela

10-21-2009, 07:36 AM

Here in the UK they rolled out the vaccination programme today, first to health workers/hospital patients at risk, and then from next week to all other 'at risk' groups. Both my partner and I will hopefully be included, him due to MND, me due to pregnancy. There seem to be two different types of vaccine, one by Glaxo Smith-Kline, the other by Baxter. Pros and cons with each one. D

Erica

10-21-2009, 10:58 AM

CJ
try your local health department.

brooksea

10-21-2009, 04:38 PM

According to the health department (they are one of the clinics that had the nasal mist) and my son's pediatrician, the H1N1 is being given to children between 6 (?) months and 4 years of age first. This is after healthcare workers I assume. This could be a state mandate and not federal, I have no idea.

The nurse giving my son the seasonal flu shot was not too optimistic about the H1N1 reaching the general public any time soon.

myndee11

10-21-2009, 07:36 PM

FYI -

All flushots contain mercury!!! Mercury causes neurodegenerative diseases !!!! such as ALS !!! most of you most likely have this disease because of the vaccines you recieved as children, and/or you have amalgam fillings !!!

Do your research and remember a doctor is not a scientist, I recommend you find a scientist who can show you scientific proof and not just stuff they learned to say and prescribe in med school !!!

I have called around to every local pharmacy and clinic (listed on the DCD site) within 50 miles of us to see if they have the H1N1 injectable vaccine. Two had the nasal mist vaccine and were only giving it to very young children, none had the injectable. (I understand the mist should not be taken by pALS, since it is a live virus.) My husband's GP will not be getting the vaccine at all.

Have any of you actually gotten an H1N1 shot yet? If so, was it available at a clinic/pharmacy or a doc's office?

brooksea

10-21-2009, 09:12 PM

Mindy,

If my husband gets H1N1, it will be all over. I'm talking done! So, do we take a chance on the vaccine or do we take a chance on the virus?

He's already got ALS. There ain't no goin back.

I've been researching ALS for 3 years now and I've learned that no amount of pulling of the teeth (mercury) or stoppage of vaccines is going to help stop my husband's progression.

You are apparently new to this and I applaud you for wanting to help. All I can say is my husband has tried many "natural" things that have been suggested to us and none have done a damn thing to halt the progression.

Perhaps you would like to read about research re: ALS. Go to ALSTDI. Or, read as many medical journals as you can regarding the disease.

By the way, sorry you have someone close to you with ALS.

GlenBrittle

10-21-2009, 10:18 PM

Hear! Hear!

Tell it like it is CJ .

Glen

pamnandy

10-21-2009, 10:32 PM

peter57

10-21-2009, 11:50 PM

I have been told re the Mercury in the H1N1 vaccine is less than is in fish from the sea so i am not at all concerned re the vaccine.

I still eat fish on a regular basis and havent stopped due to the mercury content.

(note i have yet to have my shot, not because i dont want to but because i couldnt get to the clinics just been. Planning to go to the next one they have.)

Cheers
Peter

myndee11

10-22-2009, 09:06 AM

I have been researching neurodegeneritive disease for 5 years working closely with a biochemist and naturalpathic physician, I know its hard for all of you to think that anything other than what your Dr. says would be worth trying. All Im suggesting is that you research the effects of all the toxins we've been exposed to. Google ...."mycoplasma" . I almost lost my son due to exposure to neurotoxins he was deathly ill and the Dr. told me there was nothing they could do and gave me a 1-2 year life expectancy, they told me if he gets the flu that he will die and to make sure he gets the flu shot every year !!!! I could not accept this information and I was not going to let my baby die, so I turned to alternative medicine and a holistic lifestyle. Its been almost 5years he will be 10 in Dec. He is healthy and well, thanks to nutrition and pure science and of course God. He will NEVER get the flu shot esspecially one that has not been tested ! We've worked so hard just to get all the toxins out of his body, why would I allow any amount to be put back in, just to avoid a flu that hasnt even killed as many people as the normal flu kills every year ?? that would be a huge mistake !!! My son gets the flu every year and gets stronger every year !!!

All Im saying is... I never gave up on my son and I will never give up on my friend !

thanks for the comments

John1

10-22-2009, 01:23 PM

I have been researching neurodegeneritive disease for 5 years working closely with a biochemist and naturalpathic physician, I know its hard for all of you to think that anything other than what your Dr. says would be worth trying.............. He will NEVER get the flu shot esspecially one that has not been tested ! We've worked so hard just to get all the toxins out of his body, why would I allow any amount to be put back in, just to avoid a flu that hasnt even killed as many people as the normal flu kills every year ?? ...

thanks for the comments
Hello myndee,

I'm glad to hear you are open to comments. You are naive if you think people here, some of whom have lived with ALS for upwards of 15 years, blindly accept the advice of their physicians. If you educate yourself by searching on some of the many discussions here over the years you will be very surprised. For example, here, as elsewhere, the myth of mercury almalgams causing ALS has been discussed extensively. I am surprised that someone who has been researching ALS for 5 years with the help of a naturopath can't spell neurodegenerative and naturopathic. I suggest you tone down the rhetoric, open your eyes to the benefits as well as the shortcomings of modern medicine and get your son the H1N1 flu shot when available. He is in a high-risk age group. Maybe you could cut down on the fish you feed him for a week or two to compensate for the mercury in the flu shot.

myndee11

10-22-2009, 02:05 PM

indigosd

10-22-2009, 02:45 PM

ohhhh....:[ It makes me so sad when we do not play nice in the sandbox with one another... myndee, so sorry that your post was taken in a less than loving, supportive way. Maybe it is a full moon or something?! We all come here with our own philosophy, our personal perceptions and our unique coping mechanisms. I can totally understand the need to remove toxins to be healthy. I am a Registered Nurse and I do believe in Holistic Medicine. But, if I thought that feeding DH my cats fur balls that she threw up would cure him I would be making it into a delicious meatloaf! I absolutely applaud your convictions and congrats on saving the life of your baby boy! Way to go MOM! I feel the same as brooksea about the H1N1. My DH has ALS. If he gets H1N1 there is the real possibility that it will kill him. He is getting the vaccine because I am selfish and I want him for every possible minute that we may have together. Thank you for sharing.

John1

10-22-2009, 06:21 PM

WOW John-

Anger and frustration especially over spelling errors ???!!! You might die sooner than you think with all that ANGER directed toward someone who is shocked and upset that my best friend has been diagnosed with this terminal illness !!

If you're dying anyway why not try ANYTHING possible to extend life ?

Hi myndee,

No anger here. No multiple exclamation marks or upper case shouting in my post. I do weary of people with little background and less interest in looking at unbiased scientific research posting that detox programs or removing amalgams will help people with ALS. I don't think you are a scammer and probably do believe that they help. Somehow you have taken my challenging your thesis as a personal attack. Many of these programs are dangerous and if nothing else, are very expensive and benefit only the vendor's bottom line. The naive and desperate new PALS is separated from a bundle of cash that might be needed to keep him alive and leading a fullfilling and happy life with the purchase of proven medical technology such as bipaps, ventilators and diaphragm pacers. These are medical advances, in many cases invented by, yes, doctors who practice western medicine. They are tested and proven and found to benefit PALS in some cases delaying progression of symptoms or at least relieving them. If you are promoting detox as a routine procedure to help people with ALS, then you should be able to produce documentation to prove the validity of your statements.

I don't believe that postulations, no matter how well intended, should go unchallenged if they put others at risk. I believe that yours are a case in point.

BTW I don't drink diet pop or any other kind for that matter. Not sure why you assumed I did.

John

brooksea

10-22-2009, 08:50 PM

John,

Admit it! You're drinking Kool-Aid!!!:twisted:

brooksea

10-22-2009, 09:13 PM

There are risks in every thing we choose to do or not to do. That is life. However, weighing all the options is our own choice and educating ourselves to what those options are would be a logical thing to do.

My son almost died of the seasonal flu when he was two. He was in the hospital hooked up to an IV for a week in a giant baby crib with me by his side constantly. He also had asthma. It was pure torture watching him suffer and cry constantly. I now make sure he has the flu shot every year. We could've lost him and that would have been the third time in his life he came close to death.

John1

10-23-2009, 08:43 AM

All right, I admit it. But I don't mix it with sugar, only extra-sour lemon juice.

myndee11

10-23-2009, 09:26 AM

Hahahaha !

Well if you are at the point where you are comfortable just accepting the fact that you or your loved one is going to die and you just want to make it as comfortable as you possibly can then good for you,

My friend is only 30 and she was just diagnosed so I remain hopeful and supportive and willing to do ANYTHING for her.

Its not going to harm/ hurt her to detox and a few other natural steps to a healthier life style, and if it gives her extra time Ill let you know, if you're still around.

indigosd

10-23-2009, 12:01 PM

DH got the H1N1 this morning because our son has H1N1!! We are now all on Tamiflu. wahhhhaaaa btw-DH love to drink Diet COKE!

brooksea

10-23-2009, 12:38 PM

indigo- Was it the injection or mist? And where did you receive it (I mean what facility not where on your body! ;)) How is your son doing? This is the exact scenario I've been fearing.

Mindy- It's very admirable of you to care so much for your dear friend. I hope you will investigate the known factors that keep a pALS living longer. Eating healthy food certainly will not hurt your friend. But be advised that research has shown that high fat/cholesterol diets are beneficial in extending the life of pALS and they need the weight. Also, there are certain supplements that pALS should steer away from. You can find scientifically detailed information regarding this at the ALSTDI forum. Just use the search feature on that forum. Active participants have listed in their profiles the supplements and devices they have tried and are trying. Good luck to you and your friend. One other thing, please remember we are all entitled to our own opinion and some of us have been dealing with ALS for years and have seen and researched a lot. We are not trying to be combative, just trying to give you a heads up on what we already know that you have yet to learn.

indigosd

10-23-2009, 12:50 PM

They gave him the injection as our PALS and CALS are not to have the nasal spray. It was at my little rural clinic with my family Dr. Sometimes it is a bonus to live in a teeny, tiny little spot on this earth. Matthew is really sick. Resting now but will begin the q 4 hour neb tx when he awakens and pray that he doesn't get Pneumonia or RSV. I am trying to keep them isolated from one another. I am deflated and exhausted and now just giving it up to the Universe. I have done all that I can. ;[

brooksea

10-23-2009, 01:39 PM

Hang in there! Please keep us updated and try to get a little rest.

BarryG

10-23-2009, 02:56 PM

"Its not going to harm/ hurt her to detox and a few other natural steps to a healthier life style, and if it gives her extra time Ill let you know, if you're still around."

Mindy, I am not trying to be a smart ass here, but how would you know if the detox and natural healthier life style gave your friend extra time? We all progress with this disease at different rates and nobody can predict or know how fast or slow it will go for any of us. And progression is not always linear, it can speed up or slow down anytime it damn well feels like it so there is no way to know if what you are doing (or not doing) is having any effect at all. I am not saying that a healthier life style is not a good idea, but nothing is as black and white as it might seem to someone who is just learning about this disease.

And as far as that extra little jab at the end "if you're still around", none of us need that kind of comment here, it doesn't help us or your friend.

BarryG

10-23-2009, 02:59 PM

indigosd, I hope that your son gets well soon and that nobody else in your house gets sick. Take care of yourself and try to grab some rest.

Barry

brooksea

10-23-2009, 05:45 PM

Amen and Amen!

Insecticided Pete

10-25-2009, 01:22 PM

hope this is relevant, but I'm a curious critter about a the whole "2nd Wave" of the H1N1...does this mean that the virus is stronger now, or just that more people are getting it because it's Flu Season? or both?

thanks...

brooksea

10-25-2009, 01:57 PM

It is my understanding that the reason for the 2nd wave is that most of the world's population is not immune to H1N1 and therefore keeps spreading. If you go to the WHO website you can find info about it.

Blubear

10-25-2009, 05:50 PM

Hi Guys, and to Mindy....The H1N1 virus is different in all people who get it. Try not to panic if you havent gotten your shots yet. I know of people who have gotten the virus and just stayed home for a few days like a small flu bug and went back to school/work. Then there is the case of my 20 year old daughter who was the first to catch it in our county last May. She did end up in the hospital, she was septic and developed phneumonia (sic) from it and dang near died. My father who has ALS (and didnt know it at the time) came into the ICU without a mask or gloves...and never caught anything. (he is stubborn, and she was in quarantine). As you can expect now we are a lot more careful going out, and take the advice of the docs...dont touch any door handle with your hands, try and stay at least 6' away from people, sneeze or cough into your arm and keep your hands away from your mouth. Try and remember that your hands go everywhere, think of the counters at the pharmacy where a lot of people go that are already sick! I keep my hands in my sleeves as much as possible, and after touching one of those ATM/Credit card paying machines I touch the key pads through my clothes or I have hand sanitizer. You do get used to doing this......and yes the flu shots contain metal, but its not going to hurt a person who already has ALS. Be patient ya all, and for now and always for all those nasty germs out there...be safe...
Hugs

Insecticided Pete

10-26-2009, 06:30 AM

well, it's too late for me then, because my roommate has been sick for a week, he doesn't even cover his mouth when he coughs - but I didn't really pay no mind because I just read about this "2nd Wave" yesterday - now I realize how many times I've touched the counter-tops the door handles whatever... I have a nasty cough, runny nose, fever, and a feeling of tightness in my lungs. So. Just what I need.

BarryG

10-26-2009, 01:08 PM

So I'm just back from my flu shots, seasonal flu in my right arm and H1N1 in my left. No problems so far and I'll let you know if there is any adverse effects. My wife got hers too so we both will have sore arms and hopefully nothing else. :):)

Blubear

10-26-2009, 05:02 PM

Hey Pete---- If you have had your symptoms for 2 days or less, go to your doc and try and get some Tamiflu. Zycam is over the counter and can be used at the first sign of any flu/cold symptoms. Dont take any Zycam that is not done orally. The nasal swabs and sprays have been taken off the market for side effects such as loss of smell. If it is to late for either of these, load up at at least 1000mg of vitamin C, lots and lots of water, and keep a close eye on that fever. If the fever goes on to long or above 103 get to a doctor or hospital. My daughters fever was 101-102 and then one day jumped to 104.7 and thats when we went to the hospital. Be aware of all your symptoms, be careful, and still try and steer clear of your roommate. You may not have the same bug. (most likely you do, but dont take the chance) Hang in there and let us know when you are in the clear.
Hugs

Marjorie R. Wilcox

10-27-2009, 12:27 AM

There is a shortage or delay in getting the flu vaccines where we live. Rick hasn't been able to even get the regular flu shot yet and we have no idea when he will.... The next town west of here closed its school because
of the H1N1 flu.

He refuses to stay away from people and what I do to encourage him to protect himself goes in one ear and out the other. Even with his congested broncial tubes, cough and imbalance, he went both weekend days to the VA hospital to volunteer making and giving out ice cream. He isn't contageous, just fighting aspiration pneumonia.

If he gets the flu or even a cold, he won't be able to sleep. We both know that. He has to have the bipap.
What can I do with him/ he is an unselfish giver.... and foolish. I love his attitude... can't help it. He's a saint.

indigosd

10-27-2009, 03:12 PM

Update: Matthew is better! Wayne has had absolutely no ill effects from his H1N1 last week in his left arm and the Pneumovax in his right. Wayne and I have been on the Tamiflu and still no symptoms. YAHOO Has anyone had the Shingles Vaccine? Our Dr. wants Wayne to have it when we return.

GlenBrittle

10-27-2009, 05:48 PM

Sounds like I can get in line on Friday. Health care workers and chronically ill people first.

Some say smart-asses are chronically bent - close enough , im getting in line ;)

BarryG

10-27-2009, 05:50 PM

Glen if anyone can talk his way to the front of the line it would be you!

mare

10-27-2009, 05:52 PM

Barry-
would that be talk his way, or PUSH his way to the front of the line??? LOL

GlenBrittle

10-27-2009, 05:56 PM

A little bit of both I would say .

Has anyone heard the horn on a Pronto M91 chair ? OMG its embarrassing. I would make better noise by lifting my leg.

Glen

BarryG

10-27-2009, 06:01 PM

mare

10-27-2009, 06:02 PM

Glen-
You have a horn on your chair??? Aren't you special!!!

GlenBrittle

10-27-2009, 06:08 PM

Yep , and it sounds like the dishwasher is done the cycle.

Maybe if I hit it a just the right intervals and drive backwards .. yeah thats it

GlenBrittle

10-27-2009, 06:11 PM

"I would make better noise by lifting my leg"

That would be an assault on TWO senses and would certainly clear the way but remember, you only want to clear the lineup, not the whole place. The person who gives you the shot has to still be there (and conscious). :-P

Hell Yeah . They are going to inflict pain on me , i'm going in for the fight.

Butt, I just thought of a flaw. Has anyone tried to lift a cheek on a ROHO seat ? Damn thing follows the contours.

pamnandy

10-27-2009, 09:15 PM

Thanks for the laugh, I needed that.

Insecticided Pete

10-28-2009, 04:42 PM

what worries me is that I haven't been diagnosed with MND yet, yet I noticed breathing problems some while back - mind you I only noticed symptoms a little over a year ago - could my breathing have become compromised enough that this new virus will take me over and do me in? I feel a tightness in my lungs right now - I tried to gargle some warm salt water and was quickly so out of breath I had to stop...

thing is... I'm not diagnosed, so I'm not on a priority list for anything and even if I went to the hospital they wouldn't believe me . If I don't get back in the next 5 days, I'm in the hospital, possibly ICU, or possibly dead. honestly, this is serious.
this is why I want to ream out my doc for making me wait... here's the kicker... 9 months! to see the specialist... "9 months is getting in early..." - meanwhile, the guy is telling me that he suspects MND. ha! at my age, 9 months is an eternity.
I noticed breathing problems months ago - and no one believed me - even though every time I open my mouth I'm shorter on breath or when I sit back in a chair I'm shorter on breath or when I walk I'm way shorter on breath than I've ever been.
also, I'm only 5'9, 210 lbs - when it comes to the Swine Flu, aren't 'bigger' types more susceptible to...death ?

well, it was a decent life...

Blubear

10-28-2009, 05:52 PM

Insecticided Pete,.....Stop that now darlin!!! If I were you, I would demand to see a respiratory therapist. Severe anxiety, which it sounds like you have, (perhaps in addition to what you may already have) can also cause shortness of breath. If you have MND, the disease isnt going to go anywhere. Have you had a pneumonia shot yet? How about the regular flu shot? Do you have to get a pre-authorization from your primary doc in order for your insurance to cover a specialist? Mine doesnt. I just call the specialist directly. My fathers ALS started with breathing problems, along with facial droop and some slurring, and he was dx with sleep apnea. Do you have any other symptoms? Hang in there, keep being pro-active with your doc.....let us know how you are doing in the mean time okay!
Hugs!