View Full Version : Demyelination w/ PLS?
jennibf
08-24-2009, 09:08 PM
Doctor's office called and they found demyelination and some other junk but I asked about lesions and they said there were none, just demyelination so I asked about the PLS diagnosis and she said that there can be demyelination in PLS??? Say what?
Anyone heard of this?
ARGH...I am frustrated today. I am tired of having parkinsonism symptoms and fascics and I want some CHEESE to go with my WHINE.
I go to the Cleveland Clinic in Cleveland, OH the first part of Nov. They (my docs) say it's the third best place for MND peeps.
:twisted::evil::oops::confused:
Zaphoon
08-24-2009, 10:20 PM
Jenni,
I'd like to know where the first 2 best places are for ALS peeps!
It seems to me I did hear that demylinating can take place in PLS but I couldn't tell you the source.
What kind of cheese would you like? I'm a Swiss cheese guy, myself!
Toodles!
P.S.
Where do you have fascics?
i searched for some info on this.
there is not much and will try to find some more when i have time.
however i did find the info below which does state what i have said before that you can have minor lmn involvement in pls.
i know i do have minor lmn involvement after 10yrs with pls but i am not too worried about it.
Primary lateral sclerosis: clinical, neurophysiological, and magnetic resonance findings -- Kuipers-Upmeijer et al. 71 (5): 615 -- Journal of Neurology, Neurosurgery, and Psychiatry (http://jnnp.bmj.com/cgi/content/abstract/71/5/615)
Zaphoon
08-25-2009, 09:50 AM
Caroline,
Thanks for posting that link. I found it informative.
Kim
jennibf
08-26-2009, 07:38 PM
Kim,
My fascics are everywhere...UGH...more prominant lately in my right arm and leg and it is the left side that I have the most trouble with?? I have fascics in my chin and one drink of wine makes me salivate way too much...very embarassing to talk, always afraid I'm going to spit on someone.
I'm in a better space today mentally.
Caroline,
Thank you for the link!
OH and my cardiologist said Mayo was in the top two but I cannot remember the other (another sign of demyelination, haha)
