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View Full Version : We Need Your Voice. Please share your story.


Laurie P
06-08-2009, 08:19 PM
Hello:

I do hope you don't mind my jumping in and posting, however, I thought this seemed this appropriate time to introduce myself and talk about a new initiative we have launched at the ALS Society of Canada.

My name is Laurie Pringle. I work as the Senior Manager Philanthopy for the ALS Society of Canada. June is ALS Awareness Month in Canada and in countries around the world.

To help spread awareness of ALS everywhere, ALS Canada has launched http://www.MyALSStory.com

We would like this initiative to take advantage of the ability of the internet to cross borders and spread awareness around the world to the many incredible stories of people and families everywhere whose lives have been impacted by ALS. This can be someone with ALS, family members, friends, colleagues - you name it! If someone has a story to share, we want the world to hear it.

Nobody can talk about ALS better than you can. If you are comfortable sharing your story, please visit the site and share your story. We need to make more people aware of ALS - and to do that, we need your voice.

The website will allow you to post a link to your story on twitter and facebook. You are also free to place a link in your story to your own personal webpages and/or charity of choice, anywhere in the world.

The ALS Society of Canada is on twitter and facebook. If you have any questions you can contact me directly at LP@als.ca or "tweet" us at @alscanada. If you're on facebook, feel free to "friend" me. You'll find my public profile listed as Laurie Pringle.

Thank you so much, for taking the time to read this post.

I hope to have an opportunity to get to know you all better in the future.

Sincerely,
Laurie Pringle

joelc
06-08-2009, 08:24 PM
Thank you Laurie! My story will be forth coming.

Laurie P
06-08-2009, 08:27 PM
Thanks very much Joel!

Just a quick note - to get this done quickly and inexpensively, we built the site using our Walk for ALS infrastructure. Just ignore the stuff about where your donation will go and when you get to the story page, click on the red font that says "Click Here to Change Text" to delete the placeholder text and replace it with your story.

Most people don't have a problem with it - but a couple people were confused.

Thanks again!

Laurie P
06-08-2009, 08:29 PM
BTW - I just noticed I misspelled philanthropy. I really do know how to spell the name of my job. I just need typing lessons! :)

hopingforcure
06-08-2009, 09:04 PM
Hi,I see that Joel is going to give you his story.. I am hoping that this one gets shared with anyone and everyone, he is the reason many people can face the upcoming challenges of ALS.. His story is one of so many amazing people Cals and Pals on this forum.. Thank you for this fine initiative.. Bless you...

Laurie P
06-08-2009, 09:39 PM
Thank you, Hoping.

I just read Joel's story and I'm just speechless. I know that there are many other amazing people with equally amazing stories and that's why we wanted to get this website up, even with it's imperfections.

We hope the world sees Joel's story and many more.

Thank you again for the kind words and welcome. Please feel free to share the site with anyone you feel might be interested. And please don't hesitate to contact me directly at any time.

Best,
Laurie

Al
06-08-2009, 10:57 PM
Hi Laurie. Welcome to our forums. We have quite a few interesting people here and I hope they will share their stories.

AL Pettit.

Lorie
06-08-2009, 11:06 PM
Tim and my story will be coming also!

Lorie

Laurie P
06-09-2009, 07:48 AM
Hi Al - thanks for the welcome.

Hi Lorie. Thanks very much. I look forward to reading it!

indigosd
08-20-2009, 12:56 PM
Laurie,
I tried to join and post our ALS Story but I couldn't due to "state or Province" is a requirement and none of the States for the USA are listed. :[


    
   
   
   
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