sudden severe weakness/fatigue [Archive]

MICHELLE40f

07-22-2008, 06:13 PM

olly

07-22-2008, 06:55 PM

yes i do,also i get very rarely now but very severe attacks for no reason lasting 7-10days. during these bad attacks i can barley move a limb,like i am paralysed and my symptoms get worse after. also heat can bring on severe fatigue,i can no longer enjoy a hot soak in the bath as i feel drained and not well after.
it is neurological fatigue,sometimes no matter how much you rest it does not go away till it is ready and is caused by neurological damage.
take good care
caroline:)

Geo

07-23-2008, 06:54 AM

Mich ,i get this especially when it is hot and working in the yard . I'll get the shakes .
Well ive learned that if i sit down and get some small cups of Apple sauce or Pudding and then rest a bit . Its like Hypoglycemia .i think our systems use too much GlycoNutrients that we run out . Find out what time it comes on ,like if your working 1 hour or so . I try to stop and rest every hour or so . Keeping our energy levels up is real important . Orange Juice is problably the bestbut i have GERD and so i cant have it anymore (makes acid in stomach ) . I dont get it for a long time though just an Hour or so . Geo

BethU

07-23-2008, 07:48 AM

Does anyone get sudden out of the blue,just soooooo tired it feels like someone pulled the plug on you? I get "attacks" of this,I did alot of cleaning today,then just out of the blue,its like my arms and right leg(the most) are just soooo heavy and tired,trying to eat dinner,they were shaking so bad,,,i dont understand why i get attacks like this...usually it will last for days when i over do,does anyone get this?

I can sure identify. Last time I tried the treadmill at cardiac rehab ... I was going slow and only trying for 20 minutes ... it was like suddenly hitting a wall and I had to stop immediately. It took me a week and a half to recover. I couldn't even get out of bed the rest of that day or the next. Whenever I overdo it, it seems to take soooooo long to recoup any strength.

BethU

MICHELLE40f

07-23-2008, 08:14 AM

I am with all of you on this 1,sometimes the attacks are "short lived" ,like i will be ok after a couple of hours,but sometimes,if i over do I am down for a week or two.....thanks again for replying........Michelle

Judith

07-23-2008, 04:47 PM

This is totally strange. My energy has been zapped for about 2 weeks now. It has never happened before. I can't pinpoint anything out of the ordinary that I've done to bring this on. I didn't know if it had anything to do with the PLS or not, so I made an appt. with my Primary Care Doctor for tomorrow. I just logged in and I view all these posts on fatigue!! This is me to a tee. Boy, do the surprises ever stop coming?

Judith

MICHELLE40f

07-23-2008, 07:05 PM

yea what gets me is sometimes there seems to be no answer as to why my fatigue attacks come on,sometimes i know its from over doing it,then sometimes they just hit me like a ton of bricks and i get all frustrated wondering what in the world i did to cause it.:| hope you feel better soon

sral

07-23-2008, 10:02 PM

Hi Everyone,

I was just wondering, for those of you that get these fatigue episodes, did they start at the same time as symptom onset or after a few years?

My mom has been feeling these episodes at least two years before any visible symptom started. She kept complaining to her doctor that she felt wiped out.

BethU

07-23-2008, 10:37 PM

Hi,sral ... The sudden exhaustion is only in the last couple of months, but I think the long recovery time from overwork has been there for a couple years. (ALS symptoms started in 2006.)
BethU

MICHELLE40f

07-24-2008, 10:05 AM

hi,mine started at same time,it was like i was so tired i couldnt hardly move,almost like paralyzed.

olly

07-24-2008, 01:08 PM

my fatigue also started a few months after the spasms.
in general over doing things and heat can effect it but with rest it gets better.
but i have once in a while fatigue for no reason and no amount of rest helps you just have to wait it out. this is neurological fatigue caused by cns damage.
i can have it for at least 7-10days were i am bedridden,can not move and sleep 20hrs a day. it then takes a number of weeks to recover fully,during this time my symptoms are worse and i can barely walk a few steps.
it was because of these attacks in the begining ms was suspected.
thankfully these attacks are not ofton.i find fatigue is worse than pain and spasms,you can't do anything no matter how much you try.

i hope you are ok michelle,let us know what your doctor says.
take good care.
caroline:)

Judith

07-24-2008, 02:09 PM

This is my first bout with extreme fatigue and It's been 4 years since onset of symptoms. I recently started having the cramping in the legs and now this. Oh boy, lots to look forward to, I guess.

Judith

Roger Sanders

07-26-2008, 09:56 PM

My extreme fatigue seems to come around more often than it used to. I too seem to have it in 7 to 12 day intervals. Some days I don't even feel like getting out of bed and it makes me feel like I am lazy. During these times it makes me feel guilty and depressed because it is harder for me to help my wife with laundry and house chores while she is at work. My neuro calls them flair ups.

sral

07-27-2008, 06:06 AM

Would you all say that when you feel fatigued you feel weak without strength? During these episodes my mom says that she feels without strength. She can still walk she just feels without strenght and she needs to sit down more often.

CindyM

07-27-2008, 05:10 PM

I describe these bouts as being too tired to move. And they do seem to be coming along more frequently- 7 to 12 days seems about the norm for me, as well. When I get taken out by one of them, I lie where I flop. Sometimes I want to re-position an arm or leg but it is just too much effort.

And when did eating an ice cream cone become an olympic event? LOL, I almost feel like it is time to call the paramedics when I am too tired to eat ice cream!!:(

olly

07-27-2008, 05:43 PM

lol you are so funny sometimes.
i too can be lying there and need to move but cannot move a muscle.
during the real bad boughts after sleeping all night i would get out of bed in the morning,just manage to collapse on the room sofa and not move till late afternoon/early evening. then my son would help me back to bed and there i stay sleeping till morning.
i would only manage to eat a tiny bit or drink in late afternoon or evening.
as i said this is a rare extreme thank goodness.
the usual fatigue is just tiredness and weakness not total paralysis.
take care.
caroline.:-D

MICHELLE40f

07-28-2008, 08:33 AM

yes!! tell your mom i feel exactly like that,i feel really weak,like a loss of muscle strenth and fatigue together. hope ya mom has some better days{{{{{{{{hugs}}}}}}michelle

sral

07-28-2008, 10:44 AM

Thanks Michelle!

AndyB

08-01-2008, 09:56 PM

I too have been suffering from severe fatigue which has just seemed to increase recently. Now I get it while at work sitting in front of a computer. I get very weak and if possible I go to my car and lie down or simply go home. I can't keep this up. I have other symptoms, twitching, cramps in my leg, lack of strength in my leg, goosebumps in my leg and recently double vision. Just went to an Opthamologist today and confirmed the double vision is related to the eye muscle. I have had an EMG but it was negative. So how do they explain all my symptoms? I can't keep missing work or I will lose my job. Is there something I can take to overcome this fatigue?

MICHELLE40f

08-03-2008, 08:53 AM

I would also like to know if they can give me anything for the fatigue,I made an appt. to ask my neuro,but they cant fit me in until 8/28....sheesh..........what part of jax are you in? I moved from jacksonville 2 yrs ago to ST.Marys GA. which its like 7 minutes from my house to the F lorida line..lol when we move we dont go far. goodluck,Michelle

olly

08-03-2008, 01:53 PM

hello.
at my neuro clinic there are many pamphlets on various neuro desease's.
i got one on fatigue and is printed by the ms society.
the fatigue we feel is basically the same so you can use the advice.
there are some drugs to treat it.

amantadine(symmetral or lysovir)-------------this is licensed to treat parkinsons,as well as some viral infections.
dosage about 200mg a day.
side effects can include insomnia and vivid dreams.

modafinil(provigil)------------this is used to treat narcolepsy.
side effects can include insomnia and headaches.

prokarin(procarin)-----------a skin patch that contains caffine and histamine.
can be expensive alternative medicine.

not everyone benefits from these drugs,side effect con's may out weigh the pro's.
i think finding ways of conserving energy,doing what you can when you can and not getting over tired are the best ways of dealing with fatigue..........trust me i am now an expert after 9years:lol:
look up fatigue on the ms society web page for helpfull tips and advice.
take good care everyone.
caroline:-D

awieleba

08-03-2008, 03:28 PM

thanks caroline,

I am all for conserving energy, however in my case with 3 toddlers, one being a baby......I may have to ask my neuro on 27th for some sort of drug. I hate taking drugs ( I am on lexapro) but these days, I would do ANYTHING to feel like myself again or just 1/4 of me!!

thanks for the info

april

MICHELLE40f

08-03-2008, 06:00 PM

I have tried the amantadine before,but I didnt know about the other drugs,maybe one of those will help me,the amantadine did nothing for me.

brendapals

08-03-2008, 07:36 PM

Hey everyone,

I looked back at some old records and remembered I took provigil about a year ago. Thought it might give me more energy to do everything I do! My insurance didn't cover it, so I only took it for a couple of months.

I plan to ask my neuro via email tomorrow if I could take it again. I'm not sure how it will mix with the Rilutek and lithium, but maybe I'll try that.

Keep the faith,
brenda

AndyB

08-13-2008, 01:28 PM

sral

08-13-2008, 04:27 PM

Michelle,

Did you feel very fatigue when you could still speak? My mom seems to get exhausted after she speaks even a few words.

Some motions seem to take her breath (speaking) away and others don't. She does not get out of breath when walking etc.

The unfortunate thing is that she has difficulty sleeping and never gets a complete night's rest. Nor is she able to sleep during the day for a nap. It's only normal that if every single day you are not getting even what a non sick person needs, how can she feel energetic.

Geo

08-13-2008, 06:38 PM

Rosa I would consider taking a sleep pill because lack of a good nights sleep can make you get sick ,maybe 1/2 pill or have a beer ,for some thats enough to relax you . I wake during the night anywhere from 2-4 am .then go back to sleep after i lay there a bit . At first i use to run out of breath when trying to speak 3-4 words , havent had that for 1-2 years . Geo

sral

08-13-2008, 07:14 PM

Thanks Geo.

Something definitely has to be done about the sleep problem.

By the way, I'm glad to hear that your speech nolonger takes your breath away. You would think that things get progressively worse with this disease but it seems to have gotten better for you. GREAT!

Geo

08-15-2008, 05:27 PM

in some ways things have gotten better. But i think we have level off periods. By the way My system crashed and i had to do a full recovery and lost all my e-mail addresses so write me personally so i'll get yours added to my Address book . Geo (ps) im drooling more now ,especially when i sneeze ,i get too much fluid .